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Tuberous Sclerosis

Health > Conditions and Diseases > Neurological Disorders > Neurodegenerative Diseases > Tuberous Sclerosis

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Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program - http://www.cincinnatichildrens.org/Programs_Services/229/index.asp
Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.

Kolten's Tuberous Sclerosis Page - http://www.kolten.homestead.com/Kolten.html
Describes his seizures and surgery.

Matthew's Site for Tuberous Sclerosis Awareness - http://www.angelfire.com/la3/tsc/
Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.

MedlinePlus: Tuberous Sclerosis - http://www.nlm.nih.gov/medlineplus/tuberoussclerosis.html
A list of synonyms, a summary and major features.

NORD: Tuberous Sclerosis - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous%20Sclerosis
Offers alternative names, a general discussion and further resources.

Pediatric Oncall- Tuberous Sclerosis - http://www.pediatriconcall.com/forpatients/CommonChild/tuberous_sclerosis.asp
Offers commonly asked questions about this disease.

Tuberous Sclerosis - http://www.ninds.nih.gov/disorders/tuberous_sclerosis/tuberous_sclerosis.htm
A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

Tuberous Sclerosis - Lisa's Site - http://www.title14.com/ts/
An incurable genetic condition that causes tumors to grow in various places in the body.

Tuberous Sclerosis Alliance - http://www.tsalliance.org/
US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.

Tuberous Sclerosis Association - http://www.tuberous-sclerosis.org/
UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.

Tuberous Sclerosis Fact Sheet - http://www.ninds.nih.gov/disorders/tuberous_sclerosis/detail_tuberous_sclerosis.htm
Developed by the National Institute of Neurological Disorders and Stroke (NINDS).

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