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Spinal Muscular Atrophy

Health > Conditions and Diseases > Neurological Disorders > Muscle Diseases > Spinal Muscular Atrophy

Web Pages

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Elizabeth's Page - http://www.our-sma-angels.com/elizabeth/
Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.

Families of SMA (Spinal Muscular Atrophy) - http://www.fsma.org
International support group and resource center for this disease, includes current research.

FightSMA - http://www.fightsma.org/
Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.

GeneClinics SMA Information Page - http://www.geneclinics.org/profiles/sma/index.html
Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.

Ilsa's SMA Resources - http://www.smaangel.com
A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.

Jennifer Trust for Spinal Muscular Atrophy - http://www.jtsma.org.uk
Providing support, information and research news for UK families.

Our SMA Angels - http://www.our-sma-angels.com
Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.

SMA Angels Support Site - http://www.smaangels.com
A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.

SMA Support Inc. - http://www.smasupport.com
A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.

Spinal Muscular Atrophy Foundation - http://www.smafoundation.org
Information on SMA, and the latest updates in research, treatment and funding.

The Sean W. Venezia Foundation - http://www.smafund.org
Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.

Tori's Buddies - http://www.fightsma.org/index.php?fam_tori
Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.

Twins with SMA - http://www.twinswithsma.co.uk
Sam and Alex Bolton - twins with spinal muscular atrophy. Find information and support for SMA sufferers as well as fund raising efforts.

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