Advancement of Research for Myopathies - http://www.hibm.org
A non-profit organization with the primary goal of speeding up bio-medical research on IBM2, the Autosomal Recessive form of Hereditary Inclusion Body Myopathies (HIBM). Includes a message board. |
Centronuclear & Myotubular Myopathy - http://tonilouise.tripod.com
British information point for sufferers and their families of these disorders and associated muscle abnormalities. |
Familial Desminopathy - http://www.desminopathy.plus.com
Desmin related myopathy is a disorder characterized by accumulation of desmin in the muscle cells. It can be dominantly inherited or occur spontaneously, its effects can range from mild to severe. |
Familial Periodic Paralyses - http://www.ninds.nih.gov/disorders/periodic_paralysis/periodic_paralysis.htm
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
Multicore Myopathy - http://home.cogeco.ca/~famadio/
Offers an informational and support site for all myopathies. |
Myopathy - http://www.ninds.nih.gov/disorders/myopathy/myopathy.htm
Information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). |
Myotubular Myopathy Resource Group - http://www.mtmrg.org/
Information and support for parents and medical professionals about x-linked, autosomal recessive, and autosomal dominant forms of MTM. Includes a web-based discussion group, newsletter, FAQs, articles, tips, current research, and family stories. |
Nemaline Myopathy - http://www.davidmcd.freeuk.com/
Information and contacts regarding Nemaline Myopathy |
Neuromuscular Disease Center - http://neuromuscular.wustl.edu/
Review of various muscle, nerve and neuromuscular disorders; links to relevant sites. |
NINDS: Inclusion Body Myositis - http://www.ninds.nih.gov/disorders/inclusion_body_myositis/inclusion_body_myositis.htm
Also known as inflammatory myopathy, an information sheet compiled by National Institute of Neurological Disorders and Stroke. |