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Muscular Dystrophies

Health > Conditions and Diseases > Neurological Disorders > Muscle Diseases > Muscular Dystrophies

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Organizations (15)
Personal Pages (17)
Support Groups (14)
United Kingdom (3)

Web Pages

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A Guide for Parents - http://www.mda.org.au/Information/Publications/Guide/mdaguide.asp
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.

Becker Muscular Dystrophy Information Exchange - http://www.beckermusculardystrophy.org
Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.

DMD Information - http://www.angelfire.com/band/teja/index_dmd.html
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.

DMD Pioneers - http://www.dmdpioneers.org/
Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.

Duchenne/Becker Muscular Dystrophy - http://www.ygyh.org/dmd/
Includes key facts and animated slide shows of causes, diagnosis and treatment.

FSH-MD Support Group - http://www.fsh-group.org/index2.html
Provides support for those with Facio Scapulo Humeral and their carers.

General Practice Notebook - Duchenne muscular dystrophy - http://www.gpnotebook.co.uk/simplepage.cfm?ID=-885719035
Clinically-oriented information.

Living For Today, Preparing For Tomorrow - http://www.livingfortoday.org
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.

MDA Ride For Life - http://www.mdarideforlife.org/
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.

Muscular Dystrophy - http://www.musculardystrophy.gr/
Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.

Muscular Dystrophy Campaign - http://www.see-search.com/musculardystrophycampaign.htm
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.

National Registry of Myotonic Dystrophy and FSHD Patients and Family Members - http://www.urmc.rochester.edu/nihregistry/
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.

NINDS Muscular Dystrophy Information Page - http://www.ninds.nih.gov/disorders/md/md.htm
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).

Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular Dystrophy - http://www.chestjournal.org/cgi/reprint/112/4/1024.pdf
Study evaluating the effects of a new respiratory management protocol on respiratory morbidity and hospitalization rates for patients with Duchenne muscular dystrophy. From the American College of Chest Physicians.

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