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Australian Spina Bifida and Hydrocephalus Association http://www.asbha.org.au
National organization acting as the peak body for information and support. Provides opportunity to email questions to an expert, fact sheets and contact information.
Hydrocephalus Association http://www.hydroassoc.org/
Non-profit support and advocacy group information on resources and education for families and individuals.
International Federation for Spina Bifida and Hydrocephalus http://www.ifglobal.org/
World-wide umbrella organisation. Aims to disseminate information and expertise throughout the world to families, individuals, professionals and volunteers.
National Hydrocephalus Foundation, Inc. http://nhfonline.org
NHF goals are to facilitate a network for those affected by hydrocephalus, increase public awareness, and give moral support. Along with advocating research for the cause and prevention of this disorder.
Spina Bifida and Hydrocephalus Association of Canada http://www.sbhac.ca/
Information, current news, research grants and discussion forum. National organization.
Spina Bifida and Hydrocephalus Association of Ontario http://www.sbhao.on.ca
Offers support and research into the causes and treatment. Includes FAQ, Medical Information, details of events and research programs.
The Hydrocephalus Foundation, Inc. http://www.hydrocephalus.org/
Non-profit support organization provides information and resources for patients and families affected by hydrocephalus. Saugus, MA

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