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Huntington's Disease

Health > Conditions and Diseases > Neurological Disorders > Huntington's Disease

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Support Groups (2)

Web Pages

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Australian Huntington Disease Association (Vic) - http://www.ahda.com.au
Information about Huntington Disease and HD support services available in Victoria.

Australian Huntington's Disease Association Inc. - http://www.ahdansw.asn.au/
Offers support for families living in the Australian states of New South Wales and the Australian Capital Territory. Includes resources and information about NSW.

Australian Huntington's Disease Association (Qld) Inc. - http://www.qahda.com/
Gives disease information, services available in Queensland Australia and links.

Caring for People with Huntington's Disease - http://www.kumc.edu/hospital/huntingtons/
Information about caring for people with Huntington's disease, for patients, families and professionals.

CureHD Foundation - http://www.curehd.org
A charity site aiming to spread awareness, information, and news about Huntington's disease.

eMedicine Health - Huntington Disease Dementia - http://www.emedicinehealth.com/articles/39041-1.asp
Consumer health resource center providing information on the causes, symptoms, and treatment.

Generation's of Hope - http://generationsofhope.tripod.com/
Building a camp and advocacy programs for children and families of Huntington's disease.

Heather's Huntington's Disease Page - http://heatherdugdale.angelfire.com/
Features a weblog, care giving tips, ways to fight brain fog, myths, the author's story, families’ story, poetry, and ways to have a positive testing experience.

Huntington Disease Clinical Research - http://www.cmmt.ubc.ca/research/clinical/HD_Clinical_Research/
The clinic provides care from several perspectives for individual(s) with HD as well as their families.

Huntington Disease Medical Clinic - http://www.cmmt.ubc.ca/clinical/
The clinic provides care from several perspectives for individuals with Huntington Disease (HD) as well as their families. Based at the University of British Columbia, Vancouver, Canada.

Huntington's Disease - http://www.ninds.nih.gov/disorders/huntington/huntington.htm
An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

Huntington's Disease Advocacy Center - http://www.hdac.org
Information, questions and answers, problem-sharing, personal experiences and articles on Huntington's disease.

Huntington's Disease Association UK - http://www.hda.org.uk
Supports people affected by the disease and provides information and advice to professionals.

Huntington's Disease Blog - http://www.huntingtons.info
Weblog with the latest information on research and news.

Huntington's Disease For Families - http://huntingtondisease.tripod.com/
Information for all families living with this disease including people with HD, caregivers, those at risk and young people.

Huntington's Disease Information - http://www.lib.uchicago.edu/~rd13/hd
A resource on Huntington's disease.

Huntington's Disease Overview - http://neurologicalillness.suite101.com/article.cfm/huntingtons_disease_overview
Provides articles, blogs, and discussions on HD. Topics include communication, safe housing, and behavioral issues.

Huntington's Disease Program UCHC - http://psychiatry.uchc.edu/huntingtons/
Services of the Huntington's disease program of the University of Connecticut Health Center.

Huntington's Disease Society of America - http://www.hdsa.org
Research, assistance, and education.

International Huntington Association - http://www.huntington-assoc.com/
Federation of national voluntary health agencies.

John and Jean's Story - http://members.aol.com/jgriff2296/
A personal website with the story of a family affected by Huntington's disease (UK).

Juvenile HD - http://endoflifecare.tripod.com/juvenilehuntingtonsdisease/
Information for families with a child with juvenile HD or one at-risk. Includes at-risk, genetic testing/testing of children, related JHD and HD symptoms and how to recognize/help, types of therapies, various medication and drug searches, surgeries, procedures used in testing, suicide, divorce, disabilities, assisstive technology, support links, and benefits/insurance.

Nutrition for People with Huntington's Disease - http://www.lib.uchicago.edu/~rd13/hd/nutritn.html
Nutritional information, and resource links on aspects of nutritional care for people with Huntington's disease.

The Huntington's Disease Lighthouse - http://hdlighthouse.org/
Current information on treatments, drugs, support and patient resources.

Tony's Family Site - http://www.bridger.freeuk.com
A personal website detailing how Huntington's disease has affected Tony's family and friends.

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