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Chiari Malformations

Health > Conditions and Diseases > Neurological Disorders > Congenital Anomalies > Chiari Malformations

Web Pages

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Carion Fenn Syringomyelia Foundation - http://www.syringomyelia.ca
Canadian site offering support for those effected by condition. Includes forum, personal stories and contact details.

Carries Chiari Connection - http://freewebs.com/carrieschiariconnection/
Provides support, awareness, information, and a way to connect chiarians together. Includes a blog, photo gallery, and resources.

Chiari & Related Disorders Yahoo forum - http://ca.groups.yahoo.com/group/chiarigroup_malformation
Online support group. Registration required.

Chiari Institute - http://www.chiariinstitute.com/index.html
Multidisciplinary center for the management of patients suffering from Chiari malformation. Includes details of research.

Chiari Treatment Center - http://www.chiaricare.com
Treatment facility located at the Medical Center of Aurora in Colorado. Contains information about the centre and its staff, brief overview of the condition and research.

Erika's Chiari Page - http://www.angelfire.com/hi5/figgyminute/
Her diagnosis and treatment of Chiari Malformation, Syringomyelia, and Basilar Invagination. Includes medical information, pictures, and links for further information.

Karine's Chiari Page for Teens - http://www.angelfire.com/hi3/teenchiaripage/index.html
A website for teens who have Chiari Malformation and Syringomyelia.

Matthew's Chiari Malformation - http://www.freewebs.com/matthewschiari/
A personal page about a boy who has this disorder. Includes a blog, news and information for parents.

Mothers With Angels - Chiari Page - http://www.angelfire.com/hi3/mwa/chiari.html
Includes medical links, forums, chat rooms, discussion lists, support groups, and personal home pages about rare disorders.

NINDS: Chiari Malformation Information Page - http://www.ninds.nih.gov/disorders/chiari/chiari.htm
Fact sheet provided by National Institute of Neurological Disorders and Stroke.

World Arnold Chiari Malformation Association - http://www.pressenter.com/~wacma
Information, support, and education for patients, caregivers, and health professionals regarding Chiari.

Yahoo Groups: Chiari - http://groups.yahoo.com/group/chiari/
The World ACM Association's ACM/syringomyelia support group and mailing list. A group for and about those who suffer from Arnold Chiari Malformation with or without syringomyelia/syrinx.

Yahoo Groups: Chiari-kids - http://groups.yahoo.com/group/chiari-kids/
A World ACM Association members-only email list for children and teens with Arnold Chiari Malformations.

Yahoo! Groups : Chiari_Information - http://health.groups.yahoo.com/group/chiari_information/
Online group devoted to medical information and support for people suffering from/affected by Arnold Chiari Malformation (ACM).

Yahoo! Groups: Chiarigroup_malformation - http://health.groups.yahoo.com/group/chiarigroup_malformation/
Online support for those affected by Chiari Malformations and associated problems.

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