Benign Intracranial Hypertension - http://www.mjmoore.co.uk/bih/
A UK based site relaying a personal experience, with symptoms, possible causes, and diagnosis. Message boards are included to connect with others living with BIH. |
care2 BIH group - http://www.care2.com/c2c/group/BIH
A support and educational group for those diagnosed with B.I.H, their families and friends; also for compassionate souls who wish to learn more and help others. |
Dutch PTC Support Group - http://www.pseudotumorcerebri.nl/
Viewable in both Dutch and English, this site is maintained by the Dutch PTC Support Group. Subscribe to the monthly newsletter, read personal PTC stories and an informal survey conducted by the managers of this group of the members; along with the survey results. |
http://www.angelfire.com/hi5/bihuk/ - http://www.angelfire.com/hi5/bihuk/
This site provides a listing of symptoms associated with Benign Intracranial Hypertension. View the steps to diagnosis, and visit the definitions page for explanations to the most common terms associated with BIH. A message board is provided to connect with others. |
http://www.iih.org.uk/ - http://www.iih.org.uk/
Organization aims to campaign for research and to promote education about idiopathic intracranial hypertensio. Includes a number of information leaflets about IIH, its symptoms, and related subjects. |
IIH Support - http://www.iihsupport.org/
A forum offering support, advice and help for people with idiopathic intracranial hypertension, also known as BIH (Benign Intracranial Hypertension), and PTC (pseudotumor cerebri). |
Intracranial Hypertension Research Foundation - http://www.ihrfoundation.org
Nonprofit organization supporting research and the causes and treatment of IH (pseudotumor cerebri). Information about the condition, patient registry, research news, and links to related sites. |
Living with Pseudotumor Cerebri - http://www.findmemyhouse.com/ptc/index.htm
Includes an online book called "The PTC Primer," an explanation of pseudotumor cerebri, newsletters, sign-up for a patient database, and links to related sites and support groups. |
Yahoo! Groups : PTC - http://groups.yahoo.com/group/ptc/
This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate. |
Yahoo! Groups: PTC-Support-Group - http://groups.yahoo.com/group/ptc-support-group/?yguid=88510150
This is an email support group for people who have Pseudotumor Cerebri. A chat room is also provided for additional support. |