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Marfan Syndrome

Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Marfan Syndrome

Web Pages

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A Diary about Marfan's - http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html
Marfan's patients diary of the diseases events in her life. Includes a list of links.

American Heart Association - Marfan's Syndrome - http://www.americanheart.org/presenter.jhtml?identifier=4672
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.

Canadian Marfan Association - http://www.marfan.ca/
Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.

International Federation of Marfan Syndrome Organizations - http://www.marfanworld.org/
A global information center providing links to Organizations around the world.

Life and Issues of Marfan's Syndrome - http://www.io.com/~cortese/marfan/
Personal site by which describes the pathology and gives a bit of advice.

Living With Marfans - http://jrmarfan58.com
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.

Marfan Association UK - http://www.marfan.org.uk
The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.

Marfan Support and Information - http://www.marfan.net.au
Support group in New South Wales, Australia.

Marfan Syndrome - http://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ag=Y&ArticleKey=411
A Question-Answer format page of information.

Marfan Syndrome - http://www.ygyh.org/marfan/whatisit.htm
A guide to this connective tissue disease.

Marfan Syndrome - http://www.merck.com/mmhe/sec23/ch279/ch279c.html
Online chapter from The Merck Manual of Medical Information.

Marfan Syndrome - http://www.emedicine.com/PED/topic1372.htm
Article from eMedicine.

Marfan Syndrome: Does Diet Play a Role - http://www.ctds.info/marfan.html
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.

Marfans Research Foundation - http://www.marfansresearchfoundation.ie
Irish charity with information on fund raising activities and the condition.

MFS Type 1 Fibrillin Gene - http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=154700
Major resources listed as well as genetic information.

National Marfan Foundation - http://www.marfan.org/
Providing accurate and timely information about the disorder to patients, family members and physicians.

Questions and Answers about Marfan Syndrome - http://www.niams.nih.gov/Health_Info/Marfan_Syndrome/default.asp
From the National Institutes of Health.

Slovak Marfan Association - http://marfan.szm.sk
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.

South African Marfan Syndrome Organisation - http://www.marfan.org.za
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.

The Mystery of Akhenaten: Genetics or Aesthetics? - http://www.heptune.com/Marfans.html
A history of the pharaoh along with theories applied to what he may have had, including Marfan's.

Univ. of Washington - Marfan Syndrome - http://www.orthop.washington.edu/arthritis/types/marfan/01
What the disease is and includes the impacts on daily life.

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