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Ehlers-Danlos Syndrome

Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Ehlers-Danlos Syndrome

Web Pages

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"China Doll" Syndrome - http://moondancer.150m.com/ehlers.html
Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.

American Massage Therapy Association - The Hypermobile Client/Therapist - http://www.amtamassage.org/journal/olcott2.html
Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.

Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome - http://www.arthritis.org/conditions/diseasecenter/eds.asp
Symptoms, diagnosis and treatment of the condition.

Arthritis Insight-EDS Tips for Surgery - http://arthritisinsight.com/medical/surgery/eds.html
If you or a family member with EDS needs surgery, read this and share it with your doctor.

Coalition for Heritable Disorders of Connective Tissue - http://www.chdct.org
Research organization for genetic connective tissue disorders.

Department of Pathology - http://www.pathology.washington.edu/clinical/collagen/guidelines/ehlersdanlossyndrome/
Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS.

Diagnose-Me: Treatments: Prolotherapy - http://www.diagnose-me.com/treat/T85233.html
Some EDS patients have obtained excellent results with prolotherapy treatments.

EDS Living - a Journal - http://edsliving.livejournal.com/
Learn what it's like to live with EDS for this woman and her children by following her online journal.

EDS Today - http://www.edstoday.org/
The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.

Ehlers Danlos Foundation of New Zealand - http://www.edfnz.org.nz
Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.

Ehlers-Danlos Hope - http://ehler.8m.com
A Syrian patient gives a personal plea for better medical support and research.

Ehlers-Danlos National Foundation - http://www.ednf.org/
American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.

Ehlers-Danlos National Foundation - Michiana Branch - http://smackdabdesign.com/mednf/
Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.

Ehlers-Danlos Syndrome Information - http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01
A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department.

Ehlers-Danlos Syndrome Medical Information - http://www.medicinenet.com/ehlers-danlos_syndrome/index.htm
Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, and pregnancy considerations.

Ehlers-Danlos Syndrome Support Group - http://www.ehlers-danlos.org
This site offers information for patients and doctors, plus links.

Electronic Textbook of Hand Surgery - http://www.eatonhand.com
Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.

eMedicine - Ehlers-Danlos Syndrome - http://www.emedicine.com/derm/topic696.htm
Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.

Hypermobility & Fibromyalgia Support Site - http://anaiis.tripod.com/hmedfm/index.html
Offers information and support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders.

Hypermobility Portal - http://hypermobility.objectis.net/
Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.

NORD: Ehlers-Danlos Syndrome - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers%20Danlos%20Syndrome
Information about EDS from the National Organization for Rare Disorders.

Oral Manifestations of Ehlers-Danlos Syndrome - http://www.cda-adc.ca/jcda/vol-67/issue-6/330.html
EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.

Sandy Simmons' Connective Tissue Disorder Site - http://www.ctds.info/
Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)

The Hypermobility Syndrome Association - http://www.hypermobility.org/
HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, and message boards.

The Swedish Ehlers-Danlos Syndrome National Association - http://www.ehlers-danlos.se/indexEng.html
The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning symptoms and consequences. Find contact details and links.

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