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Interstitial Cystitis
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Citrus Valley Interstitial Cystitis Support Group
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http://www.icaction.com
Dedicated to bringing order and control to ones life if the medical conditions labeled IC and/or chronic pelvic pain is the diagnosis. FAQs, links, a doctor's corner, and meeting dates and notes.
Confident Choices: Nutrition Education for IC Patients
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http://www.nutraconsults.com/confidentchoices.html
Created by a registered dietitian to address the unique needs of Interstitial Cystitis patients.
Cystitis and Overactive Bladder Foundation (UK)
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http://www.cobfoundation.org/
Located in the UK, this patient organization provides information and support on IC, bacterial cystitis and overactive bladder.
European Society For the Study of IC - ESSIC
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http://www.essic.eu/index.html
A professional research organization dedicated to interstitial cystitis/painful bladder syndrome in Europe.
Healthy Body Healthy Mind - Interstitial Cystitis
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http://www.itvisus.com/programs/hbhm/episode_1106_Interstitial_Cystitis_Private-Pain.asp
Produced in 2008, this video discusses the diagnosis and treatment of IC. Shares patient stories and features Terri Jo Myers, Dr. David Kaufman, and Dr. Jeffrey Dell.
ICadvice
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http://www.icadvice.com
Interstitial Cystitis patient community providing a forum, recipes, articles, and stories.
International Painful Bladder Foundation
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http://www.painful-bladder.org/
Provides coverage for urological conferences, with research summaries.
Interstitial Cystitis a Road to Recovery
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http://www.icaroadtorecovery.com
This blog promotes the alternative treatment program of Dr. Matia Brizman, a Doctor of Acupuncture and practitioner of Chinese medicine.
Interstitial Cystitis Association - ICA
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http://www.ichelp.org
Based in Maryland, USA, and providing educational information for patients and health professionals, as well as details of research, treatments and public awareness campaigns.
Interstitial Cystitis Network - ICN
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http://www.ic-network.com/
Includes patient educational materials, support forum, live support chats, professional resources, newsletters, blogs, guest lectures and videocasts.
Interstitial Cystitis Success Stories
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http://www.icsuccessonline.com
The author shares her success story in treating interstitial cystitis with long-term antibiotics. Offers several "success" stories from other patients covering a variety of treatments.
Mayo Clinic - Interstitial Cystitis
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http://www.mayoclinic.com/health/interstitial-cystitis/DS00497
Offers a concise description of the diagnosis, symptoms, causes, risk factors, therapies and self-help strategies for interstitial cystitis.
National Kidney and Urologic Diseases Information Clearinghouse
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http://www.niddk.nih.gov/health/urolog/pubs/cystitis/cystitis.htm
In depth look at interstitial cystitis and its causes, types, diagnosis and treatment.
NIDDK - Interstitial Cystitis Clinical Trials Group/Research Network - ICCRN
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http://www.niddk.nih.gov/patient/iccrn/iccrn.htm
A list of research centers that participated in the interstitial cystitis clinical trials research network.
Secret Suffering LLC
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http://www.secretsuffering.com/
This on-line community offers support for interstitial cystitis patients who struggle with pain during intimacy. Includes blog, radio and videocasts.
The Angry Bladder
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http://www.theangrybladder.com
Created and maintained by a woman with interstitial cystitis. Offers an introductory look at living with IC, mixed with gentle humor.
The Methodist Hospital - Interstitial Cystitis
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http://methodisthealth.com/cgi-bin/hmdim/home/basic.do?channelId=-1073830932&contentId=1073791377&contentType=HEALTHTOPIC_CONTENT_TYPE
What it is, causes, symptoms, diagnosis and treatment.
Univ. or Maryland IC Research Center
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http://icresearch.umaryland.edu/
Considered a leading IC research centers in the world, the Univ. of Maryland offers several studies for patients to participate in, including a study on the role of genetics and IC.
Urologic Pelvic Pain Collaborative Research Network
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http://porter.cceb.upenn.edu:7778/servlet/page?_pageid=389,391,400&_dad=portal30&_schema=PORTAL30
This website shares in depth information on two key federal research projects, the IC and Prostatitis Collaborative Research Networks. Learn about new, federal funded research projects here.
UroToday - Interstitial Cystitis
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http://www.urotoday.com/browse_categories/interstitial_cystitis/1364/
A comprehensive news service covering the latest IC research announcements, medical journal reviews, national and international conference coverage written by medical professionals.
WebMD - Interstitial Cystitis
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http://emedicine.medscape.com/article/441831-overview
A course for medical professionals seeking to earn continuing medical education credits. Author Eric Rovner MD.
Wikipedia - Interstitial Cystitis/Painful Bladder Syndrome
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http://en.wikipedia.org/wiki/Interstitial_cystitis
A comprehensive summary of interstitial cystitis and painful bladder syndrome, including causes, symptoms, diagnosis and treatment. Includes references.
Yahoo Group: Interstitialcystitischronicpain
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http://groups.yahoo.com/group/interstitialcystitischronicpain/
This is an age restricted email support group which offers support and updated information when possible.
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