Children of the Moon - http://www.moonchildren.com
A portal site that provides an online community for children, teens and adults with xeroderma pigmentosum. |
National Organization of Rare Disorders - Xeroderma Pigmentosum - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Xeroderma%20Pigmentosum
Offers alternative names, a general discussion and resources. |
Online Mendelian Inheritance in Man - Xeroderma Pigmentosum - http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=OMIM&dopt=Detailed&tmpl=dispomimTemplate&list_uids=278700
Includes summaries of genetic research results and citations. |
Xeroderma Pigmentosum - http://digilander.libero.it/camdic/XERODERMA%20PIGMENTOSUM.html
An article about this disorder in English and Italian along with some images. |
Xeroderma Pigmentosum Society - http://www.xps.org
Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program. |