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Wolf-Hirschhorn Syndrome
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Web Pages
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4P- Support Group, Inc. http://www.4p-supportgroup.org/
USA-based non-profit association of families of children with 4p-, offering phone support, newsletters, national biannual gathering and regional meetings.
Arran Benjamin Willock http://www.willock.net/arran/
Includes very detailed month-by-month status reports of a WHS boy born April 2000.
AWHSSG Home http://home.vicnet.net.au/~awhssg/
Australian Wolf-Hirschhorn Syndrome Support Group, with pictures of the webmaster's daughter Bethany Louise, and reports from the biennial conference held in odd-numbered years.
eMedicine - Wolf-Hirschhorn Syndrome http://www.emedicine.com/ped/topic2446.htm
Detailed information on differential diagnosis, genetics, likely clinical history, and symptoms.
Online Mendelian Inheritance in Man http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=OMIM&dopt=Detailed&tmpl=dispomimTemplate&list_uids=194190
Features a list of reported case studies and symptoms, genetic information, and important references.
WHS 4p - Support Group UK http://www.whs.webk.co.uk/
Includes a beginners' guide to the underlying genetic cause. Managed by Mrs C. V. Hilder, mother of a WHS son.
Wolf-Hirschhorn Syndrome http://www.wolf-hirschhorn.de/
German WHS Support Group, with information for parents and medical professionals. Includes a very list of symptoms.

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