Jeans for Genes Day - http://www.jeansforgenes.com/
Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders. |
National Library of Medicine - http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=omim&dopt=Detailed&tmpl=dispomimTemplate&list_uids=601675
Trichothiodystrophy, the synonyms, a summary and a list of the major features. |
Trichothiodystrophy - Doctor Alfredo Rossi and Doctor C. Cantisani - http://www.orpha.net/data/patho/GB/uk-trichothiodystrophy.pdf
A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers. |
Yahoo! Groups : Trichothiodystrophy - http://health.groups.yahoo.com/group/Trichothiodystrophy/
Uniting parents and individuals whose loved ones have the Trichothiodystrophy Syndrome. |
Yahoo! Groups : Trichothiodystrophy Family Contact - http://health.groups.yahoo.com/group/TTD-support/
For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy. |