Ben's Dream - http://www.bensdream.org
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter. |
Bennett Children's Foundation - http://www.claritystudio.com/helpachild/
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support. |
Children's Medical Research Foundation - http://www.curekirby.org/
Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation. |
Frankiepants - http://www.frankiepants.com
Personal site about a child with this disorder. Provides details about the condition. |
http://www.mpssociety.org/content/4039/MPS_III/ - http://www.mpssociety.org/content/4039/MPS_III/
Information, including the causes, different forms, the inheritance and how the disorder progresses. |