Bigger than our Bodies - http://moonshines.com/pks/
Contains news, events and links related to PKS. |
Frappr Maps: PKS Support - http://www.frappr.com/pkssupport
A map of individuals with the condition around the world, including photos. |
Jake's World - http://www.jakezane.com/
Features the biography, photos and videos of a child with PKS. |
National Library of Medicine - http://www.nlm.nih.gov/archive/20061212/mesh/jablonski/cgi/jablonski/syndrome_cgif5c5.html
The synonyms of chromosome 12p tetrasomy syndrome, a summary and a list of major features. |
NORD: Pallister Killian Mosaic Syndrome - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pallister%20Killian%20Mosaic%20Syndrome
Offers the synonyms, a general discussion and further resources. |
OrphaNet: Tetrasomy 12p - http://www.orpha.net//consor/cgi-bin/OC_Exp.php?Lng=GB&Expert=884
A collection of global organizations and support groups related to the genetic condition. |
Pallister-Killian Mosaic Syndrome - http://www.pk-syndrome.org/
Offers overview, support and news in English and Italian. |
PKS Kids - http://www.pkskids.net/
Includes biographies and photos of children with the syndrome, first-hand information from parents, and links to related support and equipment resources. |
PKS Support - http://groups.yahoo.com/group/pks_support/
An online support group, with a discussion forum, family photos and informal surveys. |