Carolina Fragile X Project - http://www.fpg.unc.edu/~fx/
A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them. |
Conquer Fragile X, Inc. - http://www.conquerfragilex.org
Creating a virtual research center in Israel to find a cure. |
Fragile X Association of Australia - http://www.fragilex.org.au/
Information on this disease, medical aspects, education, references, contacts and what's new in Australia |
Fragile X Association of Southern California - http://www.fraxsocal.org
Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation. |
Fragile X Research Foundation of Canada - http://www.fragile-x.ca/
Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join. |
Fragile X Syndrome - Diagnostic and Carrier Testing - http://www.faseb.org/genetics/acmg/pol-16.htm
A Policy Statement from the American College of Medical Genetics. |
FRAXA Research Foundation Home Page - http://www.fraxa.org/
Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's. |
Living with Fragile X - http://fragilex.ca
One family's account of raising 3 children with Fragile X. |
Maryland Fragile X Resource Group - http://www.mdfragilex.org/
A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources. |
Online Support Group - http://groups.yahoo.com/group/fragilex/
Support group for Family's who are dealing with Fragile X Syndrome. |