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Cystic Fibrosis

Health > Conditions and Diseases > Genetic Disorders > Cystic Fibrosis

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Camps (1)
Centers (8)
Conferences (1)
Fundraising (6)

News and Media (1)
Organizations (24)
Personal Pages (34)

Research (4)
Support Groups (5)
Testing (6)

Web Pages

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A-Z Directory of Cystic Fibrosis Resources - http://www.cellscience.com/CFmain.html
Biomedical directory with listings of hospitals, charities, research, and information by topic and location.

CF Prescriber - http://www.cfprescriber.com/
Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.

Clayton Bates Cystic Fibrosis Support Site - http://www.claytonbates.org
For family, friends, and other supporters to find out about the disease and offer support for Clayton.

Cystic Fibrosis Health FactSheet - http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html
Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format

Cystic Fibrosis Links - http://www.goodgulf.com/cystic.html
Cystic Fibrosis Links and Information

Cystic Fibrosis Medicine - http://www.cysticfibrosismedicine.com
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family

Cystic Fibrosis Resource Center - http://www.healingwell.com/cysticfibrosis/
Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.

Cystic Fibrosis Western Australia - http://www.cysticfibrosis.org.au
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.

Cystic Fibrosis: Therapeutic Options for Co-management - http://www.thorne.com/media/cysticfibrosis.pdf
Illustrated article details causes, symptoms, treatment, prognosis, and other effected systems.

CysticFibrosis.com - http://cysticfibrosis.com/
Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.

Home Page-Harminder - http://student.biology.arizona.edu/honors96/group9/Page2.html
Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might develop if the theory behind this article prove true.

Jewish Genetic Diseases - Cystic Fibrosis - http://www.mazornet.com/genetics/cystic_fibrosis.asp
Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.

MedlinePlus: Cystic Fibrosis - http://www.nlm.nih.gov/medlineplus/cysticfibrosis.html
A source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.

MyCysticFibrosis.com - http://www.mycysticfibrosis.com
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.

The Breathing Room - http://www.thebreathingroom.org
Guidance about the art of living with cystic fibrosis.

The Spirit of Lo - Inspirational Book - http://www.spiritoflo.com
Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.

YourLungHealth.org : Cystic Fibrosis - http://www.yourlunghealth.org/lung_disease/cystic_fibrosis/index.cfm
Explains this complex disease, including symptoms, causes, diagnosis, current treatments, prevention, and links to additional information.

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