1st Touch Foundation - http://www.1sttouch.org/
Chicago Cubs player Derek Lee's official website devoted to finding all 3000 people in North America with LCA. |
EyeRounds - http://webeye.ophth.uiowa.edu/eyeforum/Genetic-Testing-for-Lebers-Congenital-Amaurosis.htm
Dr. Edwin Stone delivers a presentation on the disease, its genotype, and current genetic breakthroughs. |
Foundation for Retinal Research - http://www.tfrr.org/
Information about the condition (along with background about heredity and eye function), resources for families, and solicitation for donations to fund research. |
Gene Reviews - http://genetests.org/servlet/access?db=geneclinics&site=gt&id=8888891&key=YrwfG-ZvMuxzu&gry=&fcn=y&fw=wQHr&filename=/profiles/lca/index.html
Description of the genes responsible for causing LCA, including information about genetic testing and differential diagnoses. |
http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=204000 - http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=204000
Information about the disease, focusing on gene mutations and associated symptoms. Links to numerous full-text research reports. |
LCA Blog - http://lcablog.blogspot.com/
A patient's journal, mainly focusing on research breakthroughs and news updates. |
The CAF Directory - http://www.cafamily.org.uk/Direct/l23.html
A description of the disease and its inheritance patterns. |
WonderBaby - http://www.wonderbaby.org/search-topics/lca.html
News, facts, and information about the disease, including an FAQ. |
Yahoo Groups: LCA - http://groups.yahoo.com/group/LCA/
For those interested in sharing and sourcing information relating to this genetic disorder. Includes a chat, photos, and a message board. |