Bandaides and Blackboards - http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/
Supports kids, teenagers and adults who are dealing with having a medical problem. Advice about teasing, what to expect in a hospital, poetry, and shared stories. |
Children and Grief - http://www.aacap.org/publications/factsfam/grief.htm
Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families). |
Dealing With a Health Condition - http://kidshealth.org/teen/your_mind/problems/deal_chronic_illness.html
Explains teenagers how to cope, to take control, deal with others. |
Pain and Chronic Illness in Children - http://www.touchbriefings.com/pdf/14/lth031_r_cowley.PDF
Short paper on the importance of pain management. |
Parental Advice on Coping with Chronic Illness of your Child - http://www.parenting-ed.org/handout3/Specific Concerns and Problems/coping with chronic illness.htm
Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers. |
Promoting Resilience in Youth with Chronic Conditions and their Parents - http://www.allaboutkids.umn.edu/kdwbvfc/FamilyMonograph.PDF
Paper on family centered care, describes impact, principles, assessment, healthy family functioning. |
Shared Vision - http://pediatrics.aappublications.org/cgi/content/full/105/1/S2/277
Complete article (also as PDF) on longterm needs, financial and medical planning. |
Starbright Foundation - http://www.starlight.org/site/c.fuLQK6MMIpG/b.1038035/k.BDF4/Home.htm
Features empowerment programs for seriously ill children. Includes chatrooms, videos, comic books, and cd-roms. |
Teenagers and Coping with Chronic Illness - http://www.irishhealth.com/?level=4&id=455#top
Tips and strategies for parents with newly diagnosed teenagers. |
The Child With a Long-Term Illness - http://www.aacap.org/publications/factsfam/illness.htm
AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse. |