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	http://members.tripod.com/kendra_310/ - http://members.tripod.com/kendra_310/ Personal site of mother of sufferer offering information and advice for fellow sufferers and their families.
	Stoke-on-Trent and Staffordshire Deaf Children's Society - http://beehive.thisisstaffordshire.co.uk/default.asp?WCI=SiteHome&ID=375 Information about their activities and services.

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