Directory

Directory Help Search only in Genetic DisordersSearch the Web

Genetic Disorders

Health > Support Groups > Conditions and Diseases > Genetic Disorders

Go to Directory Home

Categories

Beckwith-Wiedemann Syndrome (2) Down Syndrome (25)

Related Category:
    Health > Conditions and Diseases > Genetic Disorders  (879)

Web Pages

Viewing in Google PageRank order               View in alphabetical order

	Alliance of Genetic Support Groups - http://www.geneticalliance.org/ National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
	Chromosome Deletion Outreach, Inc. (CDO) - http://www.chromodisorder.org/ Non-profit voluntary support group for families affected by rare chromosome disorders.
	http://idic15.org/ - http://idic15.org/ A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
	S.O.F.T. - http://www.trisomy.org/ Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
	Cornelia de Lange Syndrome (CdLS) Foundation Outreach - http://www.cdlsusa.org Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.

	Unique Rare Chromosome Disorder Support Group - http://www.rarechromo.org/ Support and information for families of children with rare disorders.
	Who is EPI ? - http://www.porphyria-europe.com The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria.
	Chromosome Help-Station - http://www.chromosomehelpstation.com/ Information on rare chromosomal disorders. Support and advice for families.
	Trisomy 18 Support Online Community - http://www.trisomy18support.org Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
	S.O.F.T. - http://www.soft.org.uk A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.

	Forum for Patients with Myotonic Dystrophy 2 - http://groups.yahoo.com/group/MyotonicDystrophy2 A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
	Distal Trisomy 10q Families - http://trisomy10q.darylanderson.com Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
	GendersInX.org - http://GendersInX.org Support and encouragement for people with congenital gender variations.
	Yahoo Support Group for CMT-HMSN-HNPP - http://health.groups.yahoo.com/group/CMT-Support/ A very active support group that prides itself on helping its members through the good - bad days and posting the latest CMT/HMSN/HNPP research information available on the web.
	Peter's Anomaly Support Group - http://www.petersanomaly.org/ An online support group for people dealing with Peter's Anomaly.

	Trisomy 18 Moms - http://www.t18moms.com/ Lists Trisomy 18, Edwards syndrome memorial site, help making a website, and share a story.
	Oto-Palatal-Digital Syndrome Family Resource Network - http://www.geocities.com/opdsyndrome/ Resources, articles, support and general information on the rare disorder, Oto-Palatal-Digital Syndrome.
	Trisomy 18 Angel - http://www.trisomy18angel.com This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.
	Thomas Scott Davidson - http://www.geocities.com/thomasscottdavidson/index.html This is a memorial website for Thomas Scott Davidson who died from Anencephaly.
	Yahoo Groups Floating Harbor - http://groups.yahoo.com/group/floating_harbor/ An active support site for the parents and families of children with Floating Harbor Syndrome.

	X-Linked Alpha Thalassemia M/R Syndrome - http://health.groups.yahoo.com/group/atr-x/ Features a Yahoo! group for family support for individuals caring for others affected by "Alpha Thalassemia Mental Retardation Syndrome (ATR-X).
	Parents of Polydactyly and Webbed Children - http://p200.ezboard.com/bparentsofpolydactylychildren A support board for those parents of children born with extra toes/fingers as well as webbing. A place to learn new information and make friends with others

Help build the largest human-edited directory on the web. Submit a Site - Open Directory Project - Become an Editor

Modified by Google - ©2009 Google
Advertise with Us - Jobs, Press, Cool Stuff...