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Facial Differences

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Apert Syndrome (8) Cleft Lip and Palate (28) Craniosynostosis (2)

Langer-Giedion Syndrome (1) Parry-Rombergs Syndrome (4) Smith-Magenis Syndrome (3)

Stickler's Syndrome (3) Treacher Collins Syndrome (4)

Web Pages

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	AboutFace - http://www.aboutfaceinternational.org/ International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
	FACES: The National Craniofacial Association - http://www.faces-cranio.org Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
	Children's Craniofacial Association - http://www.ccakids.com Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
	Changing Faces - http://www.changingfaces.org.uk/ UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
	Sincere Meditations - http://www.davidroche.com/lamott.htm Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.

	Let's Face It USA - http://www.faceit.org/ A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
	Johns Hopkins Center for Craniofacial Development and Disorders - http://www.hopkinsmedicine.org/craniofacial/ Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.
	Foundation for Faces of Children - http://www.facesofchildren.org Expert information for families and health care professionals about craniofacial conditions.
	The DRM WebWatcher: Facial Differences - http://www.disabilityresources.org/FACE.html A Disability Resources monthly guide to online resources about craniofacial differences.
	XP Support Group - http://xpsupportgroup.org.uk UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.

	The Craniofacial Society of Great Britain and Ireland - http://www.craniofacialsociety.org.uk/ Information about the society, which is a multidisciplinary forum for specialists.
	The Personal Side of Craniofacial Differences - http://members.tripod.com/~Craniofacial/index.html Personal accounts of living with craniofacial conditions, and related webrings.
	Support Works Online - http://www.supportworks.org/cat806.htm Resources to find or form support groups related to facial difference. Information on medical research.
	Cancer Of The Eye Linkline (CELL) - http://pages.zoom.co.uk/cell/index.htm UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
	Beneath the Surface - http://beneaththesurfaceweb.com Offers support and understanding to individuals of facial difference.

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