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Pierre Robin Syndrome

Health > Conditions and Diseases > Rare Disorders > Pierre Robin Syndrome

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    Health > Conditions and Diseases > Musculoskeletal Disorders  (1176)

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	Pierre Robin Network - http://www.pierrerobin.org Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
	NORD - Pierre Robin Syndrome - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome Sample report, plus links to organisations. [Fee required for full report]
	Contact a Family: Pierre Robin Syndrome - http://www.cafamily.org.uk/Direct/p24.html Main features of the condition and possible causes.
	Chase's Story - http://www.pierrerobin.com Personal account of one child's experience of this condition. Includes photographs.

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