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Pierre Robin Syndrome
  Health > Conditions and Diseases > Rare Disorders > Pierre Robin Syndrome   Go to Directory Home  

Web Pages
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  Pierre Robin Network http://www.pierrerobin.org
Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
  Contact a Family: Pierre Robin Syndrome http://www.cafamily.org.uk/Direct/p24.html
Main features of the condition and possible causes.
  Chase's Story http://www.pierrerobin.com
Personal account of one child's experience of this condition. Includes photographs.
  NORD - Pierre Robin Syndrome http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome
Sample report, plus links to organisations. [Fee required for full report]

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