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Cystinosis Research Network - http://www.cystinosis.org
Information about the organization and their mission. Includes database about the disease as well as support groups, research and links to other resources. |
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Cystinosis Foundation - http://www.cystinosisfoundation.org
Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising. |
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Cystinosis Research Foundation - http://www.natalieswish.org
Natalie's Wish is a non-profit organization. Their mission is to fund research to find better medications and ultimately a cure for this condition. |
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The Cystinosis Foundation UK - http://www.cystinosis.org.uk
Charity dedicated to assisting those with Cystinosis, their families, medical researchers and increasing the awareness of this condition. |
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EyeRounds.org: Cystinosis - http://webeye.ophth.uiowa.edu/eyeforum/cases/case4.htm
Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment. |