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Porphyrias
  Health > Conditions and Diseases > Nutrition and Metabolism Disorders > Inherited > Porphyrias   Go to Directory Home  

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    Health > Conditions and Diseases > Genetic Disorders  (948)
    Health > Conditions and Diseases > Rare Disorders  (279)

Web Pages
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  Diagnosing the Porphyrias http://www.ohsu.edu/som-hemonc/handouts/deloughery/por.shtml
An article by Thomas G. DeLoughery, Associate Professor of Medicine.
  Canadian Porphyria Foundation http://www.cpf-inc.ca/
Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
  Porphyria Page http://www.uq.edu.au/porphyria/
A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
  King George II and Porphyria http://www.mhhe.com/biosci/ap/seeleyap/cardio/reading20.mhtml
Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
  Porphyrias: Diagnosis and Treatment http://www.medstudents.com.br/metdis/metdis3.htm
Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
  Porphyria: The Unknown Disease http://members.tripod.com/~PorphBook/
Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
  Acute Intermittent Porphyria Forum http://members.tripod.com/~theaipforum/
Information and links about Porph. Includes registration form for an email list.
  Porphyria http://www.thedoctorsdoctor.com/diseases/porphyria.htm
A look at the different types of these disease and some of their characteristics.
  EPP http://members.tripod.com/~Alzuko/epp.htm
Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
  Me and AIP http://hometown.aol.com/heyjude957/aip.html
Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
  Porphyria http://groups.yahoo.com/group/porphyria/
From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
  Pediatric Oncall http://www.pediatriconcall.com/fordoctor/diseasesandcondition/porphyrias.asp
Information on porphyrias including the various types and its management.
  Suite 101 http://www.suite101.com/welcome.cfm/porphyria
Offers links and articles about Porphyria.
  Porphgroup http://groups.yahoo.com/group/porphgroup/
An e-mail group at Yahoo dealing with the metabolic disease porphyria.

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