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Refsum Disease - http://www.ninds.nih.gov/disorders/refsum/refsum.htm
Information sheet on this disease as to what it is, the symptoms, treatment and research being done. |
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Refsums Disease - http://www.srpf.a.se/forsk/refsum.html
Two articles about this disease, clinical description, inheritance, treatment and related diseases and syndromes. |
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Yahoo! Group - Refsum Disease Support Network - http://groups.yahoo.com/group/refsums_discussion/
E-mail based discussion group for people with this disorder and their families for sharing experiences, coping strategies and dietary tips. |