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Rett Syndrome
  Health > Conditions and Diseases > Neurological Disorders > Rett Syndrome   Go to Directory Home: [English]  [English]  

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Personal Pages (10)
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    Health > Conditions and Diseases > Genetic Disorders  (925)
    Health > Conditions and Diseases > Rare Disorders  (275)
    Health > Mental Health > Disorders > Child and Adolescent > Mental Retardation > Causes  (17)

Web Pages
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  Rett Syndrome Research Foundation http://www.rsrf.org
Promotes biomedical research for the treatment of Rett Syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links, studies, support groups, and information on the Rett Syndrome gene MECP2 recently discovered.
  International Rett Syndrome Association (IREA) http://www.rettsyndrome.org/
The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome.
  NINDS Rett Syndrome Information Page http://www.ninds.nih.gov/disorders/rett/rett.htm
Information in Rett Syndrome, treatment and prognosis.
  Rett Syndrome Fact Sheet http://www.ninds.nih.gov/disorders/rett/detail_rett.htm
An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS).
  Rett Syndrome Association UK http://www.rettsyndrome.org.uk/
National charity provides support to patients, their families and carers. Features details of the condition, research findings, and clinics, as well as FAQ and an events calendar.
  Rett Syndrome http://www.autism.org/rett.html
The Autism Research Institute distributes an information packet on Rett Syndrome.
  Rett Language http://www.geocities.com/pflowerett/
One family's experience with Rett Syndrome, Applied Behavioral Analysis and Discrete Trial Teaching.
  The Sarah Varon Foundation for Rett Research http://www.sarahvaronfoundation.org/
A family dedicated to finding a cure for Rett Sydrome. Find announcements, photos, and an overview of the disease.
  Rett Angels http://www.rettangels.org
Rett Syndrome forum and online support group sharing personal stories and information.

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