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International Rett Syndrome Association (IREA) - http://www.rettsyndrome.org/
The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome. |
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NINDS Rett Syndrome Information Page - http://www.ninds.nih.gov/disorders/rett/rett.htm
Information in Rett Syndrome, treatment and prognosis. |
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Rett Syndrome Fact Sheet - http://www.ninds.nih.gov/disorders/rett/detail_rett.htm
An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS). |
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Rett Syndrome Association UK - http://www.rettsyndrome.org.uk/
National charity provides support to patients, their families and carers. Features details of the condition, research findings, and clinics, as well as FAQ and an events calendar. |
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Rett Angels - http://www.rettangels.org
Rett Syndrome forum and online support group sharing personal stories and information. |