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Neurofibromatosis
  Health > Conditions and Diseases > Neurological Disorders > Peripheral Nervous System > Neurofibromatosis   Go to Directory Home  

Categories
Acoustic Neuroma (10)
Malignant Peripheral Nerve Sheath Tumors (6)
Web Pages
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  The Children's Tumor Foundation http://www.ctf.org
Dedicated to improving the health and well being of individuals and families affected by the neurofibromatosis (NF).
  Neurofibromatosis, Inc. http://www.nfinc.org/
Support and information for those with Neurofibromatosis.
  Neurofibromatosis http://www.ninds.nih.gov/disorders/neurofibromatosis/neurofibromatosis.htm
Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
  Neurofibromatosis Association of Australia Inc. http://www.nfaa.org.au/
Support group for people with neurofibromatosis. Has a medical and scientific advisory board and close affiliation with similar NF groups overseas.
  Neurofibromatosis Clinic at M. D. Anderson Cancer Center http://www.mdanderson.org/departments/neurofibrom/
Information about neurofibromatosis and details of Center which provides diagnosis, treatment, patient education, and relevant research.
  British Columbia Neurofibromatosis Foundation http://www.bcnf.bc.ca
BCNF is a membership driven organization, which empowers individuals with NF and their families to reach their full potential by providing support, education and research funding.
  http://www.nf2crew.org http://www.nf2crew.org
On-line discussion group for people with neurofibromatosis 2.
  Neurofibromatosis(Von Recklinghausen's disease) http://www.medstudents.com.br/neuro/neuro7.htm
A review of the most important aspects on physical examination, classification and treatment, for medical students.
  Understanding Neurofibromatosis http://www.uchospitals.edu/peds-neurology/neurofibromatosis/
This information will explain what NF is, what causes NF, what your family will need to do about it, and who can help you. From the University of Chicago Comer Children's Hospital.
  Just Ask! http://www.reggiebibbs.com
Presents the personal aspects of living with the disease, including news, photographs and videos.
  Neurofibromatosis Clinics Association, Inc. http://www.nfpittsburgh.org/
A non-profit organization for people with NF and their families.
  Texas Neurofibromatosis Foundation http://www.texasnf.org
Includes a list of events, fundraisers and outreach programs, as well as background information on the disease, and links to related resources.
  Race for NF Research http://www.racefornfresearch.com
Dedicated to promoting awareness of Neurofibromatosis. It also contains the latest research as well as fund raising programs (Marathons, racing, walking, etc) that raise money towards NF research.

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