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Spinal Muscular Atrophy

Health > Conditions and Diseases > Neurological Disorders > Muscle Diseases > Spinal Muscular Atrophy

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	Families of SMA (Spinal Muscular Atrophy) - http://www.fsma.org International support group and resource center for this disease, includes current research.
	Spinal Muscular Atrophy Foundation - http://www.smafoundation.org Information on SMA, and the latest updates in research, treatment and funding.
	Jennifer Trust for Spinal Muscular Atrophy - http://www.jtsma.org.uk Providing support, information and research news for UK families.
	FightSMA - http://www.fightsma.org/ Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
	SMA Support Inc. - http://www.smasupport.com A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.

	SMA Angels Support Site - http://www.smaangels.com A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
	Our SMA Angels - http://www.our-sma-angels.com Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
	Ilsa's SMA Resources - http://www.smaangel.com A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
	GeneClinics SMA Information Page - http://www.geneclinics.org/profiles/sma/index.html Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
	Tori's Buddies - http://www.fightsma.org/index.php?fam_tori Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.

	Elizabeth's Page - http://www.our-sma-angels.com/elizabeth/ Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
	The Sean W. Venezia Foundation - http://www.smafund.org Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
	Twins with SMA - http://www.twinswithsma.co.uk Sam and Alex Bolton - twins with spinal muscular atrophy. Find information and support for SMA sufferers as well as fund raising efforts.

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