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Myotubular Myopathy Resource Group - http://www.mtmrg.org/
Information and support for parents and medical professionals about x-linked, autosomal recessive, and autosomal dominant forms of MTM. Includes a web-based discussion group, newsletter, FAQs, articles, tips, current research, and family stories. |
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Nemaline Myopathy - http://www.davidmcd.freeuk.com/
Information and contacts regarding Nemaline Myopathy |
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Advancement of Research for Myopathies - http://www.hibm.org
A non-profit organization with the primary goal of speeding up bio-medical research on IBM2, the Autosomal Recessive form of Hereditary Inclusion Body Myopathies (HIBM). Includes a message board. |
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Multicore Myopathy - http://home.cogeco.ca/~famadio/
Offers an informational and support site for all myopathies. |
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Familial Desminopathy - http://www.desminopathy.plus.com
Desmin related myopathy is a disorder characterized by accumulation of desmin in the muscle cells. It can be dominantly inherited or occur spontaneously, its effects can range from mild to severe. |