  |
Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular Dystrophy - http://www.chestjournal.org/cgi/reprint/112/4/1024.pdf
Study evaluating the effects of a new respiratory management protocol on respiratory morbidity and hospitalization rates for patients with Duchenne muscular dystrophy. From the American College of Chest Physicians. |
| |
Muscular Dystrophy Campaign - http://www.see-search.com/musculardystrophycampaign.htm
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK. |
| |
DMD Information - http://www.angelfire.com/band/teja/index_dmd.html
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options. |
| |
Muscular Dystrophy - http://www.musculardystrophy.gr/
Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site. |
| |
General Practice Notebook - Duchenne muscular dystrophy - http://www.gpnotebook.co.uk/simplepage.cfm?ID=-885719035
Clinically-oriented information. |
| |
MDA Ride For Life - http://www.mdarideforlife.org/
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May. |
 |
Duchenne/Becker Muscular Dystrophy - http://www.ygyh.org/dmd/
Includes key facts and animated slide shows of causes, diagnosis and treatment. |
| |
National Registry of Myotonic Dystrophy and FSHD Patients and Family Members - http://www.urmc.rochester.edu/nihregistry/
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information. |
| |
A Guide for Parents - http://www.mda.org.au/Information/Publications/Guide/mdaguide.asp
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living. |