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TREAT-NMD - http://www.treat-nmd.eu/
The TREAT-NMD Network of Excellence is a major European-wide initiative bringing together leading researchers and clinicians to improve treatment and find cures for thousands of patients with neuromuscular disorders. Find standards of care, a newsletter, and databases. |
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National Institute of Neurological Disorders and Stroke - http://www.ninds.nih.gov/disorders/opsoclonus_myoclonus/opsoclonus_myoclonus.htm
Also called kinsbourne syndrome, myoclonic encephalopathy of Infants, or dancing eyes-dancing feet syndrome, an information sheet compiled by NINDS. |
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NINDS: Myotonia Congenita - http://www.ninds.nih.gov/disorders/myotoniacongenita/myotoniacongenita.htm
Information sheet compiled by the National Institute of Neurological Disorders and Stroke. |
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The Institute for Neuromuscular Research - http://www.inmr.com.au
The aim of the Institute for Neuromuscular research is the make the lives of children better through advances in muscle and nerve research. |
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Who has a Disability? - http://www.fortunecity.com/meltingpot/grove/1105
Post-Polio Syndrome, CFS, progressive long term disabilities, helpful hints and links, information on SS Guidelines, equipment options, accessibility solutions, handicap lifestyle changes, family awareness and support. |