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Huntington's Disease Society of America - http://www.hdsa.org
Research, assistance, and education. |
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Huntington's Disease - http://www.ninds.nih.gov/disorders/huntington/huntington.htm
An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. Includes links to NIH recruitment for drug trials and detailed information about HD. |
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Huntington Study Group - http://www.huntington-study-group.org
Coordinates and provides enrollment for drug trials across United States, Canada, Europe and Australia. |
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Australian Huntington's Disease Association Inc. - http://www.ahdansw.asn.au/
Offers support for families living in the Australian states of New South Wales and the Australian Capital Territory. Includes resources and information about NSW. |
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The Huntington's Disease Lighthouse - http://hdlighthouse.org/
Current information on treatments, drugs, support and patient resources. |
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Huntington Disease Clinical Research - http://www.cmmt.ubc.ca/research/clinical/HD_Clinical_Research/
The clinic provides care from several perspectives for individual(s) with HD as well as their families. |
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Australian Huntington Disease Association (Vic) - http://www.ahda.com.au
Information about Huntington Disease and HD support services available in Victoria. |
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Heather's Huntington's Disease Page - http://heatherdugdale.angelfire.com/
Features a weblog, care giving tips, ways to fight brain fog, myths, the author's story, families’ story, poetry, and ways to have a positive testing experience. |
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UCHC Huntington's Disease Program - http://www10.uchc.edu/huntingtons
Services of the Huntington's disease program of the University of Connecticut Health Center. |
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Huntington's Disease Program UCHC - http://psychiatry.uchc.edu/huntingtons/
Services of the Huntington's disease program of the University of Connecticut Health Center. |
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Australian Huntington's Disease Association (Qld) Inc. - http://www.qahda.com/
Gives disease information, services available in Queensland Australia and links. |
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eMedicine Health - Huntington Disease Dementia - http://www.emedicinehealth.com/articles/39041-1.asp
Consumer health resource center providing information on the causes, symptoms, and treatment. |
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Tony's Family Site - http://www.bridger.freeuk.com
A personal website detailing how Huntington's disease has affected Tony's family and friends. |
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Huntington's Disease Overview - http://neurologicalillness.suite101.com/article.cfm/huntingtons_disease_overview
Provides articles, blogs, and discussions on HD. Topics include communication, safe housing, and behavioral issues. |
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Juvenile HD - http://endoflifecare.tripod.com/juvenilehuntingtonsdisease/
Information for families with a child with juvenile HD or one at-risk. Includes at-risk, genetic testing/testing of children, related JHD and HD symptoms and how to recognize/help, types of therapies, various medication and drug searches, surgeries, procedures used in testing, suicide, divorce, disabilities, assistive technology, support links, and benefits/insurance. |