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http://www.eyie.org - http://www.eyie.org
An IBE project with the objective of giving a voice to young people around the world. Offers a chat room, contacts and information. |
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Coping With Epilepsy - http://www.coping-with-epilepsy.com/
Peer discussion and support forum. Includes news headlines and a chart of alternative treatment options. |
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HealingWell.com: Epilepsy - http://www.healingwell.com/community/default.aspx?f=23
Message boards and chat dedicated to sharing information, offering support, and coping strategies to better manage this disease. Community moderated by volunteers. |
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Yahoo! Groups: Parents of Kids with Epilepsy - http://groups.yahoo.com/group/parents-of-kids-with-epilepsy/
Combined e-mail forum for parents of children with epilepsy. |
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Yahoo! Health Groups: Ketogenic - http://health.groups.yahoo.com/group/ketogenic/
For parents, family members, and care givers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders. |
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Yahoo! Health Groups: Epilepsy Support Group - http://health.groups.yahoo.com/group/epilepsysupportgroup/
For those considering or who have tried surgery treatment options for epilepsy. Includes free membership, message boards and chat room. Also joining instructions. |
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Yahoo! Health Groups: Epilepsy Kids - http://health.groups.yahoo.com/group/epilepsy-kids/
Offering support and information for parents of children diagnosed with any form of epilepsy. |
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IDEA League Family Network - http://www.idea-league.org/famnet/
This forum is intended for carers and parents of individuals with Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy and other related sodium channel disorders. Members must register. |
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HealthBoards.com: Epilepsy Message Board - Archived - http://www.healthboards.com/epilepsy/
Past message board for information and support on epilepsy. |
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Yahoo! Health Groups: Epilepsy Advocates - http://groups.yahoo.com/group/Epilepsy_Advocates/
Made up of people that suffer from Epilepsy, parents of children with Epilepsy, people whom have previously had Epilepsy and friends of those suffering from Epilepsy. |
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Yahoo! Health Groups: Epilepsy Support and Education - http://health.groups.yahoo.com/group/epilepsysupportandeducation/
A community to help bring people with epilepsy from all corners of the world to share experiences, thoughts, and provide information. All ages are welcome and you don't have to have epilepsy to join. |
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Yahoo! Groups: Seizure Alert Dogs - http://groups.yahoo.com/group/seizurealertdogs/
Uniting people who benefit from seizure alert or assistance dogs as well as people with epilepsy who benefit from a dog's companionship. Welcoming people who want to learn more about these wonderful dogs. |
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Yahoo! Health Groups: Epilepsy Surgery Group1 - http://health.groups.yahoo.com/group/EpilepsySurgeryGroup1
Catering for those who have had surgery as a treatment option or those considering this option. |
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Yahoo! Health Groups: Rare Epilepsy Syndromes - http://health.groups.yahoo.com/group/RareEpilepsySyndromes/
To help educate and support the families dealing with rare epilepsy's. Some of these include: ESES/CSWS, LKS, LGS and Benign Rolandic. |
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Yahoo! Health Groups: SMEI - Dravet Syndrome - http://health.groups.yahoo.com/group/smei/
Email and online forum for friends and family members of those with Dravet Syndrome. Members must apply. |
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Yahoo! Health Groups: Epilepsy Circle - http://health.groups.yahoo.com/group/epilepsycircle/
E-mail and forum support group for those with an interest in epilepsy, whether it is for you, a family member, a friend, pupil or a child that has a seizure disorder or epilepsy. |
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Yahoo! Health Groups: Kuekids Australia - http://health.groups.yahoo.com/group/KuekidsAustralia/
E-mail list is to help parents, families and friends of children using the ketogenic diet who may also have food intolerance problems. |
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Yahoo! Health Groups: Epilepsy Surgery Group - http://health.groups.yahoo.com/group/EpilepsySurgeryGroup/
For those who have had brain surgery, Vagus Nerve Stimulator surgery, and Gamma Knife Radiosurgery, although you do not need to be a surgery candidate to become a member. |
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Yahoo! Health Groups: Epilepsy Cured - http://health.groups.yahoo.com/group/epilepsycured/
Shares information on curing and preventing epilepsy and seizures for patients, parents, children, and family members of those suffering from epilepsy. |
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Yahoo! Health Groups: Epilepsy - http://health.groups.yahoo.com/group/epilepsy/
For people with or know someone with Epilepsy. A place to talk, share stories and gain moral support. All ages welcome. |
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Vns Message Board - http://s4.invisionfree.com/VNS_Message_Board/
A message board designed for information exchanged related to the Vagus Nerve Stimulator. |
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Yahoo! Health Groups: Epilepsy Surgery - http://health.groups.yahoo.com/group/epilepsy_surgery/
Support email forum for those considering surgery or have had brain surgery or Vagus Nerve Stimulator surgery as a treatment option for epilepsy. Registration required. |
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Yahoo! Health Groups: Parents of Kids With Epilepsy UK - http://health.groups.yahoo.com/group/Parentsofkidswithepilepsy_uk/
Forum connecting parents of children with a wide variety of epilepsies around the worldwide. Incorporating poles, databases and photo gallery. Members must apply. |
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Yahoo! Health Groups: Epilepsy Chat - http://groups.yahoo.com/group/epilepsychat/
Social on-line venue for connecting people effected by epilepsy. |
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Yahoo! Health Groups: Doose Syndrome - http://groups.yahoo.com/group/doosesyndrome/
For parents of children who have, or who may have Myoclonic-Astatic Epilepsy, otherwise known as Doose Syndrome, a rare, severe, intractable epilepsy of early childhood. |