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http://www.eyie.org - http://www.eyie.org
An IBE project with the objective of giving a voice to young people around the world. Offers a chat room, contacts and information. |
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Yahoo! Health Groups: Ketogenic - http://health.groups.yahoo.com/group/ketogenic/
For parents, family members, and care givers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders. |
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Coping With Epilepsy - http://www.coping-with-epilepsy.com/
Peer discussion and support forum. Includes news headlines and a chart of alternative treatment options. |
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HealingWell.com: Epilepsy - http://www.healingwell.com/community/default.aspx?f=23
Message boards and chat dedicated to sharing information, offering support, and coping strategies to better manage this disease. Community moderated by volunteers. |
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HealthBoards.com: Epilepsy Message Board - Archived - http://www.healthboards.com/epilepsy/
Past message board for information and support on epilepsy. |
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IDEA League Family Network - http://www.idea-league.org/famnet/
This forum is intended for carers and parents of individuals with Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy and other related sodium channel disorders. Members must register. |
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Yahoo! Health Groups: TLE - http://health.groups.yahoo.com/group/TLE/
Discussion of temporal lobe epilepsy and/or partial complex seizure disorder. For sufferers and friends/family of sufferers. |
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Yahoo! Health Groups: Epilepsy Kids - http://health.groups.yahoo.com/group/epilepsy-kids/
Offering support and information for parents of children diagnosed with any form of epilepsy. |
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Yahoo! Health Groups: Epilepsy Support and Education - http://health.groups.yahoo.com/group/epilepsysupportandeducation/
A community to help bring people with epilepsy from all corners of the world to share experiences, thoughts, and provide information. All ages are welcome and you don't have to have epilepsy to join. |
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Yahoo! Health Groups: Epilepsy Surgery Group - http://health.groups.yahoo.com/group/EpilepsySurgeryGroup/
For those who have had brain surgery, Vagus Nerve Stimulator surgery, and Gamma Knife Radiosurgery, although you do not need to be a surgery candidate to become a member. |
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Yahoo! Health Groups: Epilepsy Circle - http://health.groups.yahoo.com/group/epilepsycircle/
E-mail and forum support group for those with an interest in epilepsy, whether it is for you, a family member, a friend, pupil or a child that has a seizure disorder or epilepsy. |
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Yahoo! Health Groups: Epilepsy Approach 1 - http://health.groups.yahoo.com/group/EpilepsyApproach1
Supporting those with this condition through discussion about treatment options, including surgical and alternative. |
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Yahoo! Health Groups: Epilepsy Surgery Group1 - http://health.groups.yahoo.com/group/EpilepsySurgeryGroup1
Catering for those who have had surgery as a treatment option or those considering this option. |
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Yahoo! Health Groups: Epilepsy Approach - http://health.groups.yahoo.com/group/EpilepsyApproach/
Supporting those to make decisions about treatment options from surgery, medication to alternative and herbal remedies. |
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Yahoo! Health Groups: ISGrads - http://health.groups.yahoo.com/group/ISGrads
Supporting those with children who have overcome Infantile Spasms, also known as West Syndrome an often debilitating form of epilepsy. |
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Yahoo! Health Groups: Doose Syndrome - http://groups.yahoo.com/group/doosesyndrome/
For parents of children who have, or who may have Myoclonic-Astatic Epilepsy, otherwise known as Doose Syndrome, a rare, severe, intractable epilepsy of early childhood. |
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Yahoo! Health Groups: Epilepsy Advocates - http://groups.yahoo.com/group/Epilepsy_Advocates/
Made up of people that suffer from Epilepsy, parents of children with Epilepsy, people whom have previously had Epilepsy and friends of those suffering from Epilepsy. |
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Yahoo! Health Groups: Epilepsy Chat - http://groups.yahoo.com/group/epilepsychat/
Social on-line venue for connecting people effected by epilepsy. |
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Yahoo! Groups: Parents of Kids with Epilepsy - http://groups.yahoo.com/group/parents-of-kids-with-epilepsy/
Combined e-mail forum for parents of children with epilepsy. |
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Yahoo! Groups: Seizure Alert Dogs - http://groups.yahoo.com/group/seizurealertdogs/
Uniting people who benefit from seizure alert or assistance dogs as well as people with epilepsy who benefit from a dog's companionship. Welcoming people who want to learn more about these wonderful dogs. |