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Growing Up With Epilepsy - http://library.thinkquest.org/J001619
Two fifth grade students in NYC Public School 56 designed a site on epilepsy based on the personal experiences. |
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Shazza's: Dealing with Dravet Syndrome - http://shazzas.info/
A parent of a child with Severe Myoclonic Epilepsy of Infancy shares her experiences with the condition. Offering activities for the kids, epilepsy events and a laymen's description of Dravet's. |
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A Miracle for Alex - http://www.amiracleforalex.org
Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources. |
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Epilepsy Health - http://www.epilepsyhealth.com/
Author Sally Fletcher shares the complementary practices that have helped her remain seizure free for 18 years - without medication. |
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Infantile Spasms - Broc's Story - http://www.infantilespasms.com
The story of Broc Bartenhagen who was diagnosed with Infantile Spasms. A summary of tests performed, treatments and tried therapies. |
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Baby Bryant My Hero - http://www.freewebs.com/bryanttel/
Bryant Lee Weasel's story about his struggle with Dravet Syndrome. |
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Experience Project: I have Epilepsy - http://www.experienceproject.com/groups/Have-Epilepsy/21836
Personal life stories from those who experience epilepsy and seizures. |
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A Dream for Sarah - http://www.adreamforsarah.com
Offering personal insight into raising a child with Dravet Syndrome, also known as Severe Myoclonic Epilepsy in Infancy. Offering Sarah's story, information on 4 Paws and the Keto diet. |
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Walking for epilepsy - http://www.galixy.net/KB2002/KB.htm
Chronicles the journey of Karla Brown as she walks 9000 miles across America to raise awareness of epilepsy. |
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Crazy For Cody - http://www.crazyforcody.com/
Cody has infantile spasms, a particularly nasty epilepsy starting in infancy. Videos, the photo gallery, treatments tried and support resources. |