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Growing Up With Epilepsy - http://library.thinkquest.org/J001619
Two fifth grade students in NYC Public School 56 designed a site on epilepsy based on the personal experiences. |
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Shazza's: Dealing with Dravet Syndrome - http://shazzas.info
A parent of a child with Severe Myoclonic Epilepsy of Infancy shares her experiences with the condition. Offering activities for the kids, epilepsy events and a laymen's description of Dravet's. |
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Crazy For Cody - http://www.crazyforcody.com/
Cody has infantile spasms, a particularly nasty epilepsy starting in infancy. Videos, the photo gallery, treatments tried and support resources. |
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Epilepsy Health - http://www.epilepsyhealth.com/
Author Sally Fletcher shares the complementary practices that have helped her remain seizure free for 18 years - without medication. |
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Infantile Spasms - Broc's Story - http://www.infantilespasms.com
The story of Broc Bartenhagen who was diagnosed with Infantile Spasms. A summary of tests performed, treatments and tried therapies. |
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Jacob's Infantile Spasms - http://www.netnomad.com/is.html
See how Jacob bet the odds by not meeting the poor prognosis expected with this usually debilitating condition. |
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Our Pyridoxine Dependency Story - Epilepsy and Vitamin B6 - http://www.angelfire.com/amiga2/jenniz/
A genetic disorder which results in seizures and developmental delays. Personal account of a journey from the first seizure to diagnosis in twin boys. |
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A Miracle for Alex - http://www.amiracleforalex.org
Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources. |
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Hope for Sydney - http://www.HopeForSydney.com
The story and of a 6 year old girl with a catastrophic form of epilepsy and gobal regression, Dravet syndrome (SMEI). Offers support and resources for special needs kids. |
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Dangerously Rare: Dravet's Syndrome - http://dangerouslyrare.blogspot.com/
Anna is a student at UNC-G majoring in Speech Pathology. Here she explores the intricacies of this condition. Analysing an article titled "Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy." |