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Hydranencephaly - http://www.ninds.nih.gov/disorders/hydranencephaly/hydranencephaly.htm
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
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Rays of Sunshine - http://hydranencephaly.tripod.com/
Information about hydranencephaly and related conditions. Personal stories of children and families. Equipment, hospice, and medical directory available. |
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Fetal Hydranencephaly - http://www.thefetus.net/page.php?id=116
Medical research presentations of five case studies. Diagrams and ultrasound photographs included. |
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Hydranencephaly - http://groups.yahoo.com/group/hydranencephaly/
Support group list for parents, families and caregivers of children with the disorder. |
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Hydranencephaly Fact Sheet - http://www.fortunecity.com/millenium/rugrats/311/page8.html
Brief description of condition and prognosis. Resources and online information provided. |