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Holoprosencephaly Family Support Site - http://hpe.home.att.net/
UK Support Group for families of children with HPE and related brain malformations. |
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Yahoo! Groups: Holoprosencephaly - http://health.groups.yahoo.com/group/holoprosencephaly/
Support group for parents and families affected by HPE. |
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Families for HoPE - http://www.familiesforhope.com/
A nonprofit organization providing support to families of infants and children diagnosed with holoprosencephaly. Contains glossary, medical terminology and information about the condition. |
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Yahoo! Groups: HPElosssupport - http://health.groups.yahoo.com/group/HPElosssupport/
For parents and families who have lost children to Holoprosencephaly. |
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Yahoo! Groups: Ausholoprosencephaly - http://groups.yahoo.com/group/ausholoprosencephaly
Support group for parents and families of children with holoprosencephaly within Australia. |