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NINDS: Chiari Malformation Information Page - http://www.ninds.nih.gov/disorders/chiari/chiari.htm
Fact sheet provided by National Institute of Neurological Disorders and Stroke. |
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World Arnold Chiari Malformation Association - http://www.pressenter.com/~wacma
Information, support, and education for patients, caregivers, and health professionals regarding Chiari. |
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Chiari Institute - http://www.chiariinstitute.com/index.html
Multidisciplinary center for the management of patients suffering from Chiari malformation. Includes details of research. |
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Yahoo Groups: Chiari - http://groups.yahoo.com/group/chiari/
The World ACM Association's ACM/syringomyelia support group and mailing list. A group for and about those who suffer from Arnold Chiari Malformation with or without syringomyelia/syrinx. |
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Mothers With Angels - Chiari Page - http://www.angelfire.com/hi3/mwa/chiari.html
Includes medical links, forums, chat rooms, discussion lists, support groups, and personal home pages about rare disorders. |
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Carries Chiari Connection - http://freewebs.com/carrieschiariconnection/
Provides support, awareness, information, and a way to connect chiarians together. Includes a blog, photo gallery, and resources. |
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Karine's Chiari Page for Teens - http://www.angelfire.com/hi3/teenchiaripage/index.html
A website for teens who have Chiari Malformation and Syringomyelia. |
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Carion Fenn Syringomyelia Foundation - http://www.syringomyelia.ca
Canadian site offering support for those effected by condition. Includes forum, personal stories and contact details. |
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Chiari Treatment Center - http://www.chiaricare.com
Treatment facility located at the Medical Center of Aurora in Colorado. Contains information about the centre and its staff, brief overview of the condition and research. |
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Matthew's Chiari Malformation - http://www.freewebs.com/matthewschiari/
A personal page about a boy who has this disorder. Includes a blog, news and information for parents. |