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Chiari Malformations
  Health > Conditions and Diseases > Neurological Disorders > Congenital Anomalies > Chiari Malformations   Go to Directory Home  

Web Pages
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  NINDS: Chiari Malformation Information Page http://www.ninds.nih.gov/disorders/chiari/chiari.htm
Fact sheet provided by National Institute of Neurological Disorders and Stroke.
  World Arnold Chiari Malformation Association http://www.pressenter.com/~wacma
Information, support, and education for patients, caregivers, and health professionals regarding Chiari.
  Chiari Institute http://www.chiariinstitute.com/index.html
Multidisciplinary center for the management of patients suffering from Chiari malformation. Includes details of research.
  Yahoo Groups: Chiari http://groups.yahoo.com/group/chiari/
The World ACM Association's ACM/syringomyelia support group and mailing list. A group for and about those who suffer from Arnold Chiari Malformation with or without syringomyelia/syrinx.
  Mothers With Angels - Chiari Page http://www.angelfire.com/hi3/mwa/chiari.html
Includes medical links, forums, chat rooms, discussion lists, support groups, and personal home pages about rare disorders.
  Carries Chiari Connection http://freewebs.com/carrieschiariconnection/
Provides support, awareness, information, and a way to connect chiarians together. Includes a blog, photo gallery, and resources.
  Karine's Chiari Page for Teens http://www.angelfire.com/hi3/teenchiaripage/index.html
A website for teens who have Chiari Malformation and Syringomyelia.
  Carion Fenn Syringomyelia Foundation http://www.syringomyelia.ca
Canadian site offering support for those effected by condition. Includes forum, personal stories and contact details.
  Chiari Treatment Center http://www.chiaricare.com
Treatment facility located at the Medical Center of Aurora in Colorado. Contains information about the centre and its staff, brief overview of the condition and research.
  Matthew's Chiari Malformation http://www.freewebs.com/matthewschiari/
A personal page about a boy who has this disorder. Includes a blog, news and information for parents.
  Yahoo Groups: Chiari-kids http://groups.yahoo.com/group/chiari-kids/
A World ACM Association members-only email list for children and teens with Arnold Chiari Malformations.
  Erika's Chiari Page http://www.angelfire.com/hi5/figgyminute/
Her diagnosis and treatment of Chiari Malformation, Syringomyelia, and Basilar Invagination. Includes medical information, pictures, and links for further information.
  Yahoo! Groups : Chiari_Information http://health.groups.yahoo.com/group/chiari_information/
Online group devoted to medical information and support for people suffering from/affected by Arnold Chiari Malformation (ACM).
  Yahoo! Groups: Chiarigroup_malformation http://health.groups.yahoo.com/group/chiarigroup_malformation/
Online support for those affected by Chiari Malformations and associated problems.
  Chiari & Related Disorders Yahoo forum http://ca.groups.yahoo.com/group/chiarigroup_malformation
Online support group. Registration required.

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