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Anencephaly
  Health > Conditions and Diseases > Neurological Disorders > Congenital Anomalies > Anencephaly   Go to Directory Home  

Related Categories:
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    Health > Reproductive Health > Pregnancy and Birth > Complications  (145)
    Society > Death > In Memoriam > Infants > Neural Cord Defects  (13)
    Society > Issues > Health > Transplantation  (13)

Web Pages
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  NINDS: Anencephaly http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm
Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
  Anencephaly Support Foundation http://www.asfhelp.com/
Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.
  Anencephaly Information http://www.anencephalie-info.org/
Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.]
  Anencephaly Net http://www.anencephaly.net/
An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.
  Yahoo! Groups: Anencephaly Blessings from Above http://groups.yahoo.com/clubs/anencephalyblessingsfromabove
A Christian pro-life support group for parents those carrying to term.
  Yahoo! Groups: Anencephaly http://groups.yahoo.com/group/anencephaly/
Global Health Network support group open to anyone affected by anencephaly.
  Carrying to Term Pages http://www.geocities.com/tabris02/index.html
Designed for those who are determined to carry their unborn child to term despite the child's fatal condition. Actively solicits tips from other mothers and fathers who experienced this.
  Anencephaly Awareness http://www.angelfire.com/mb/jessicasjourney/info.html
Information including possible causes and future prevention. Also a personal story.
  Moral Principles Concerning Infants with Anencephaly http://www.ewtn.com/library/PROLIFE/bcdanen1.htm
Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.).
  Anencephaly - Jessicas Journey http://www.geocities.com/hotsprings/spa/4346/
A parent's personal experience, relating her daughter's story.
  Faith Aminah Shabazz http://faithaminah.tripod.com/
Personal story after a diagnosis of anencephaly while still in the womb. Faith was born in March 2001 and lived until October 2003.
  Mourning Mommies http://www.geocities.com/mourningmommies/
Online support group for women who have lost babies to anencephaly.

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