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United Mitochondrial Disease Foundation - http://www.umdf.org/
To promote research for the cure and treatment, and to provide support to families. The UMDF offers a library, patient registry, support information, conferences, research and grant updates, and a special section for physicians. |
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Mitochondrial Myopathies - http://www.ninds.nih.gov/disorders/mitochondrial_myopathy/mitochondrial_myopathy.htm
An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
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Center for Inherited Disorders of Energy Metabolism (CIDEM) - http://www.cwru.edu/med/CIDEM/cidem.htm
A group of inter-disciplinary, clinical diagnostic laboratories which focus on disorders of mitochondrial function at Case Western Reserve University. |
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Carnitine Palmitoyltransferase Deficiency - http://www.spiralnotebook.org
Newsletter for health care professionals and patients interested in CPT deficiency, a mitochondrial disorder of fat metabolism that causes muscle breakdown. |
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Mitochondrial Disease in Children - http://www.kathleensworld.com/mitochon.html
All seven of Kathleen's children have mitochondrial encephalomyopathy, and two of them have hearing loss as a result. |