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Marfan Syndrome

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    Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Ehlers-Danlos Syndrome  (27)
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Web Pages

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	National Marfan Foundation - http://www.marfan.org/ Providing accurate and timely information about the disorder to patients, family members and physicians.
	Univ. of Washington - Marfan Syndrome - http://www.orthop.washington.edu/arthritis/types/marfan/01 What the disease is and includes the impacts on daily life.
	Questions and Answers about Marfan Syndrome - http://www.niams.nih.gov/Health_Info/Marfan_Syndrome/default.asp From the National Institutes of Health.
	Canadian Marfan Association - http://www.marfan.ca/ Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
	American Heart Association - Marfan's Syndrome - http://www.americanheart.org/presenter.jhtml?identifier=4672 Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.

	Polish Marfan Association - http://www.marfan.sprint.pl/ General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
	Marfan Syndrome - http://www.emedicine.com/PED/topic1372.htm Article from eMedicine.
	The Mystery of Akhenaten: Genetics or Aesthetics? - http://www.heptune.com/Marfans.html A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
	International Federation of Marfan Syndrome Organizations - http://www.marfanworld.org/ A global information center providing links to Organizations around the world.
	Marfan Association UK - http://www.marfan.org.uk The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.

	Life and Issues of Marfan's Syndrome - http://www.io.com/~cortese/marfan/ Personal site by which describes the pathology and gives a bit of advice.
	MFS Type 1 Fibrillin Gene - http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=154700 Major resources listed as well as genetic information.
	Marfan Syndrome - http://www.merck.com/mmhe/sec23/ch279/ch279c.html Online chapter from The Merck Manual of Medical Information.
	Marfan Support and Information - http://www.marfan.net.au Support group in New South Wales, Australia.
	Marfan Syndrome - http://www.ygyh.org/marfan/whatisit.htm A guide to this connective tissue disease.

	South African Marfan Syndrome Organisation - http://www.marfan.org.za Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
	Marfan Syndrome: Does Diet Play a Role - http://www.ctds.info/marfan.html Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
	Swedish Marfan Association - http://user.tninet.se/~sda301a/ Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
	A Diary about Marfan's - http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html Marfan's patients diary of the diseases events in her life. Includes a list of links.
	Slovak Marfan Association - http://marfan.szm.sk The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.

	Living With Marfans - http://jrmarfan58.com This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
	Marfans Research Foundation - http://www.marfansresearchfoundation.ie Irish charity with information on fund raising activities and the condition.
	Marfan-List - http://marfanlife.net/lists/ Information about an e-mail mailing list. Also includes links to other online support groups.
	Marfan Syndrome - http://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ag=Y&ArticleKey=411 A Question-Answer format page of information.

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