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Electronic Textbook of Hand Surgery - http://www.eatonhand.com
Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated. |
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Ehlers-Danlos Syndrome Information - http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01
A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department. |
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Ehlers-Danlos National Foundation - http://www.ednf.org/
American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups. |
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Coalition for Heritable Disorders of Connective Tissue - http://www.chdct.org
Research organization for genetic connective tissue disorders. |
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Ehlers-Danlos Syndrome Support Group - http://www.ehlers-danlos.org
This site offers information for patients and doctors, plus links. |
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The Hypermobility Syndrome Association - http://www.hypermobility.org/
HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, and message boards. |
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EDS Today - http://www.edstoday.org/
The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide. |
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Ehlers Danlos Foundation of New Zealand - http://www.edfnz.org.nz
Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public. |
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eMedicine - Ehlers-Danlos Syndrome - http://www.emedicine.com/derm/topic696.htm
Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments. |
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NORD: Ehlers-Danlos Syndrome - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers%20Danlos%20Syndrome
Information about EDS from the National Organization for Rare Disorders. |
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EDS Living - a Journal - http://edsliving.livejournal.com/
Learn what it's like to live with EDS for this woman and her children by following her online journal. |
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Department of Pathology - http://www.pathology.washington.edu/clinical/collagen/guidelines/ehlersdanlossyndrome/
Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS. |
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Ehlers-Danlos Hope - http://ehler.8m.com
A Syrian patient gives a personal plea for better medical support and research. |
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"China Doll" Syndrome - http://moondancer.150m.com/ehlers.html
Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included. |
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Hypermobility & Fibromyalgia Support Site - http://anaiis.tripod.com/hmedfm/index.html
Offers information and support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders. |