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Post Polio Syndrome
  Health > Conditions and Diseases > Infectious Diseases > Viral > Poliomyelitis > Post Polio Syndrome   Go to Directory Home  

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    Health > Conditions and Diseases > Neurological Disorders > Neurodegenerative Diseases > Motor Neuron Disease  (11)

Web Pages
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  NINDS Post-Polio Syndrome Information Page http://www.ninds.nih.gov/health_and_medical/disorders/post_polio_short.htm
Post-Polio Syndrome information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
  Gazette International Networking Institute (GINI) http://www.post-polio.org
Coordinator of International Polio Network (IPN) and International Ventilator Users Network (IVUN), collects, creates, and disseminates information for people with disabilities, specifically polio survivors and ventilator users. Information includes newsletters, directories, and books about independent living, home mechanical ventilation, and the late effects of poliomyelitis.
  British Polio Fellowship http://www.britishpolio.org.uk/
Information about this British PPS support group. PPS questions and answers, publications, library, news and message board.
  Post-Polio-Med Email List http://www.skally.net/ppmed/
Forum for researchers, medical professionals, polio survivors, and anyone interested in PPS: for research and treatment issues, conferences, support group meetings, and other related topics.
  Harvest Center Post-Polio Page http://members.aol.com/harvestctr/pps/polio.html
Materials about PPS: including articles, audio tapes, the PPS Computerized Assessment Program.
  Post-Polio Syndrome Central http://www.skally.net/ppsc/
A listing of PPS [postpolio, post polio syndrome] internet resources, original papers, surveys and polls.
  North Central Florida Post-Polio Support Group http://www.postpoliosupport.com
Educates and informs polio survivors, healthcare professionals and family about polio, post-polio syndrome and care in polio vaccination.
  The Lincolnshire Post-Polio Network http://www.ott.zynet.co.uk/polio/lincolnshire/index.html
For polio survivors and medical experts. Includes extensive library of articles, networking section, news and information about post-polio syndrome. Lincolnshire, England, UK.
  New Jersey Polio Network http://njpolio.org/
Information and news of interest to polio survivors, their families, and the healthcare community. Links, local chapters, newsletter and conference updates, advocacy.
  Living With Post-Polio Syndrome http://healthlink.mcw.edu/article/996372413.html
Medical College of Wisconsin, Living with Post-Polio Syndrome, theories, information and a few links
  Lincolnshire Post-Polio Network http://www.zynet.co.uk/ott/polio/lincolnshire/
An information service for polio survivors and medical professionals. Website offers an expanding online library of currently over one hundred full text articles on post-polio conditions, plus a bi-monthly newsletter and a categorised directory of healthcare resources with descriptions.
  PPS Survey http://www.skally.net/pps_survey/
A survey for polio survivors with PPS
  Post Polio Syndrome Responses http://www.ppsr.com/
A personal web page with links to Polio/PPS and other Disability Information.
  PPS Related Events, Seminars and Conferences http://www.skally.net/ppsc/event.html
Calendar of non-commercial events concerning post-polio syndrome.
  Post-Polio Resource Group of SE Wisconsin http://www.pprg.org
Formed by polio survivors to provide information and support to polio survivors and their families and to educate the medical community and the general public about post-polio syndrome (PPS).
  Saskatchewan Awareness of Post Polio Inc. http://www.geocities.com/sapponline/
Information on polio, post-polio syndrome, diagnosis, treatment, biographies, links to other resources, and equipment for the disabled.
  Greater Boston Post-Polio Association http://gbppa.org
Support and selected resources for polio survivors now experiencing the effects of post-polio syndrome, plus information on several Massachusetts PPS support groups.
  San Diego Polio Survivors http://home.mindspring.com/~polio/
Support group. Profile, activities, membership, calendar, photographs, contact information.
  Post Polio Awareness Support Society Minnesota http://www.ppassmn.org
State wide group of Polio survivors organized to assist other survivors.
  Polio Survivors of the 21st Century http://www.survivorsofpolio.com
Features a not for profit polio survivor website and support forum.
  How to Prevent Further Disability In Polio Survivors - Silver 1999 http://www.skally.net/ppsc/silver2.html
PPS expert lists things to do and not to do.
  Post Polio Syndrome Forum http://forums.delphiforums.com/bigcrusher/start
A web discussion forum for people who have or think they have Post Polio Syndrome. A forum where all are welcome, and to share from a-z pertaining to their PPS. disability.
  Why PPS Is So Hard To Understand-Bollenbach 1999 http://www.skally.net/ppsc/und.html
Description of muscle types, muscles indirectly affected by PPS, how PPS differs from ALS, immune vs autoimmune.
  Post-Polio Network of New South Wales Australia http://www.post-polionetwork.org.au/index2.html
PPS information, Australian Support Groups, Seminars, newsletters, articles and general Australian disability information.
  RI Infantile Paralysis Foundation http://www.riipf.org
Provides assistance to former polio patients and individuals who experience post-polio syndrome. Find the services and types of equipment available and contact information. Located in Warwick, RI.

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