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eMedicine - Wolf-Hirschhorn Syndrome - http://www.emedicine.com/ped/topic2446.htm
Detailed information on differential diagnosis, genetics, likely clinical history, and symptoms. |
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4P- Support Group, Inc. - http://www.4p-supportgroup.org/
USA-based non-profit association of families of children with 4p-, offering phone support, newsletters, national biannual gathering and regional meetings. |
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WHS 4p - Support Group UK - http://www.whs.webk.co.uk/
Includes a beginners' guide to the underlying genetic cause. Managed by Mrs C. V. Hilder, mother of a WHS son. |
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AWHSSG Home - http://home.vicnet.net.au/~awhssg/
Australian Wolf-Hirschhorn Syndrome Support Group, with pictures of the webmaster's daughter Bethany Louise, and reports from the biennial conference held in odd-numbered years. |
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Arran Benjamin Willock - http://www.willock.net/arran/
Includes very detailed month-by-month status reports of a WHS boy born April 2000. |