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Von Hippel-Lindau Family Alliance - http://www.vhl.org/
Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data. (Include links to Canadian, Dutch, Japanese and European branches) [English/Spanish/Portuguese/German/Danish/Dutch] |
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Von Hippel-Lindau Disease - http://www.ninds.nih.gov/disorders/von_hippel_lindau/von_hippel_lindau.htm
Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
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Radiology: Von Hippel Lindau Disease - http://www.cc.nih.gov/ccc/papers/vonhip/toc.html
Genetic, clinical and imaging features from the NIH. |
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Family Village - http://www.familyvillage.wisc.edu/lib_vonh.htm
Links to chat rooms, web sites and information about Von Hippel Lindau's disease. |