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Jeans for Genes Day - http://www.jeansforgenes.com/
Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders. |
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Trichothiodystrophy - Doctor Alfredo Rossi and Doctor C. Cantisani - http://www.orpha.net/data/patho/GB/uk-trichothiodystrophy.pdf
A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers. |
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Hair Shaft Defects - Trichothiodystrophy - http://www.keratin.com/ag/ag013.shtml
Hair and hair disease information with answers to common questions, treatment details, book reviews, web links. |
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A Parent's Account of Trichoththiodystrophy - http://www.vp-it.com.au/sammyjoe/
A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Contains an online journal and links to related sites. |
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About Andrea’s Disease - http://monsite.wanadoo.fr/andrea2610/
Personal history of a girl in France. [English/French] |
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Yahoo! Groups : Trichothiodystrophy Family Contact - http://health.groups.yahoo.com/group/TTD-support/
For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy. |
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Atlas of Genetics and Cytogenetics in Oncology and Haematology - http://www.infobiogen.fr/services/chromcancer/Kprones/TrichothioID10042.html
Description and links. |
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Foundation for Ichthyosis and Related Skin Types - http://www.scalyskin.org/content.cfm?ContentID=105&ColumnID=14
Provides support, information, education and advocacy for individuals and families affected by ichthyosis. F.I.R.S.T. supports research into causes, treatments and a cure for ichthyosis. |
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Yahoo! Groups : Trichothiodystrophy - http://health.groups.yahoo.com/group/Trichothiodystrophy/
Uniting parents and individuals whose loved ones have the Trichothiodystrophy Syndrome. |
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National Library of Medicine - http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=omim&dopt=Detailed&tmpl=dispomimTemplate&list_uids=601675
Trichothiodystrophy, the synonyms, a summary and a list of the major features. |