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Prader-Willi Syndrome Association (USA) - http://www.pwsausa.org/
Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult), small hands and feet, mild dysmorphology, and behavior problems which can be severe. |
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The Foundation for Prader-Willi Research - http://www.fpwr.org/
A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments. |
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Prader-Willi Alliance of New York - http://www.prader-willi.org
Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population. |
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PWS Notes - http://www.pwsnotes.org/
Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions. |
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Williams Syndrome and Prader-Willi Syndrome - http://info.med.yale.edu/chldstdy/wspws
Diagnostic assessment, selected treatment services and opportunities to participate in research from the Yale University Child Study Center. |
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The Prader-Willi Syndrome Association (UK) - http://www.pwsa-uk.demon.co.uk/
Information and resources about this chromosomal disorder. |
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Inside Latham Centers - http://inside.lathamcenters.org
A residential facility, located on Cape Cod, for the treatment of adults and children with Prader-Willi Syndrome. Includes details about diet, medical news, the programs, and consulting services. |
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Latham Centers - http://www.lathamcenters.org
A non-profit, residential treatment center for the treatment of adults and children with Prader-Willi Syndrome. Find program details, a photo gallery, and contact information. Located on Cape Cod in Brewster, Massachusetts. |
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The New Jersey Chapter of the Prader-Willi Syndrome Association - http://www.pwsausa.org/nj/
Includes news, important dates, fund raising, maps and links. |