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Cystic Fibrosis Foundation - http://www.cff.org/
Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy. |
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Canadian Cystic Fibrosis Foundation - http://www.cysticfibrosis.ca/
Support and resources. Located in Toronto, Ontario. |
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Cystic Fibrosis Australia - http://www.cysticfibrosisaustralia.org.au/
Information about the organization and its aims and objectives, CF facts, events, links and contact details. |
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Cystic Fibrosis Services - http://www.cfservicespharmacy.com/
A subsidiary of the Cystic Fibrosis Foundation in the United States, and a national pharmacy that offers minimal-cost medications to individuals with the disease. |
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Cystic Fibrosis Trust - http://www.cftrust.org.uk/
National charity in the United Kingdom which funds research into the disease and provides information and support for patients and families. |
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European Cystic Fibrosis Society - http://www.ecfsoc.org/
ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis |
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Boomer Esiason Foundation - http://www.esiason.org
A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter. |
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Cystic Fibrosis Victoria Inc - http://www.cfv.org.au
Information about Cystic Fibrosis and the organisation, online chat room and message board. |
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Cystic Fibrosis Victoria Inc - http://www.cysticfibrosisvic.org.au/
Current information on Cystic Fibrosis, Cystic Fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events |
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The Genentech Endowment for Cystic Fibrosis - http://www.genentechcfendowment.org
An independent, non-profit endowment dedicated to expanding access to PulmozymeŽ (dornase alpha) therapy to qualifying un-insured and under-insured CF patients. Find the eligibility and how to apply. |
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Elizabeth Nash Foundation - http://elizabethnashfoundation.org
Supports causes reflective of Elizabeth Nash's interests and values with a specific emphasis on efforts that improve the lives of those affected by Cystic Fibrosis. |
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New Jersey State Organization of Cystic Fibrosis - http://www.njsocf.org
NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a questions and answers, news, services offered and coming events. |
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Cystic Fibrosis Nurses: the International Specialist Group - http://www.cfnurses.net
Organization whose goals include setting and promoting high standards of nursing practice in the treatment of persons with Cystic Fibrosis. |
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Victoria Chapter, Canadian Cystic Fibrosis Foundation - http://www.victoriacfchapter.ca/
The Victoria Chapter, one of 51 Chapters of the Canadian Cystic Fibrosis Foundation, works to provide a brighter future for every person born with cystic fibrosis. It assists in the quest to find a cure or control for the disease. |
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National Cystic Fibrosis Awareness Committee (NCFAC) - http://www.cfawareness.org/
Helps to advance the public awareness of the genetic disease. Mission statement and message board. |
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The Adult Cystic Fibrosis Committee of Quebec - http://www.acfcq.qc.ca
Non-profit community organization whose primary mission is to improve quality of life for persons with cystic fibrosis in Quebec. Information about CF for persons who have the disease, as well as their families, spouses, and caregivers. |
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Chicago Cystic Fibrosis Awareness Day - http://chicagocfawareness.org
Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives. |
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Reaching Out Foundation - http://www.reachingoutfoundation.org/
Provides information on the programs provided by this foundation, a personal story of a person with CF who had a double lung transplant, general information on CF, and how you can donate. |
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Lungs for Life Foundation - http://lungsforlife.org/
Provides financial assistance to cystic fibrosis and lung transplant patients. |
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Michigan Pulmonary Disease Community, Inc. - http://www.mpdci.org
Provides information, support, and advocacy for children and adults with Cystic Fibrosis. Includes adult support group, hospital CARE packages for children, scholarships, newsletter, and list of Michigan CF centers. |
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Utah Valley Institute of Cystic Fibrosis - http://members.tripod.com/uvicf/
Non-profit corporation dedicated to education, research, and dissemination of information to patients and their caregivers, medical professionals, and researchers. Offers introduction, research, contact information, and news releases. |
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Concerned Friends of Cystic Fibrosis in Israel - http://www.cfcfisrael.org
Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information. |
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Cochrane Cystic Fibrosis & Genetic Disorders Review Group - http://www.liv.ac.uk/CFGD/
An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders. |
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European Cystic Fibrosis Thematic Network - http://www.cfnetwork.be/
Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the industry. |