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CysticFibrosis.com - http://cysticfibrosis.com/
Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events. |
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Cystic Fibrosis Resource Centre - http://www.cysticfibrosis.co.uk
A source of information for cystic fibrosis patients, parents, doctors and other carers. |
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Cystic Fibrosis Medicine - http://www.cysticfibrosismedicine.com
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family |
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Cystic Fibrosis Western Australia - http://www.cysticfibrosis.org.au
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support. |
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MyCysticFibrosis.com - http://www.mycysticfibrosis.com
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team. |
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The Breathing Room - http://www.thebreathingroom.org
Guidance about the art of living with cystic fibrosis. |
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Cystic Fibrosis Resource Center - http://www.healingwell.com/cysticfibrosis/
Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards. |
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eMedTV - http://cystic-fibrosis.emedtv.com/
Learn through medically written and reviewed articles about the causes, common symptoms, treatments and the role of genetic testing for Cystic Fibrosis. |
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A-Z Directory of Cystic Fibrosis Resources - http://www.cellscience.com/CFmain.html
Biomedical directory with listings of hospitals, charities, research, and information by topic and location. |
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YourLungHealth.org : Cystic Fibrosis - http://www.yourlunghealth.org/lung_disease/cystic_fibrosis/index.cfm
Explains this complex disease, including symptoms, causes, diagnosis, current treatments, prevention, and links to additional information. |
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Pulmozyme.com - http://www.pulmozyme.com
Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc. |
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Cystic Fibrosis Health FactSheet - http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html
Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format |
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Home Page-Harminder - http://student.biology.arizona.edu/honors96/group9/Page2.html
Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true. |
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Cystic Fibrosis: Therapeutic Options for Co-management - http://www.thorne.com/media/cysticfibrosis.pdf
Illustrated article details causes, symptoms, treatment, prognosis, and other effected systems. |
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The Spirit of Lo - Inspirational Book - http://www.spiritoflo.com
Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child. |
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Irri Shark's Page - http://hometown.aol.com/irrishark/page/index.htm
About the '65 roses' story. |
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Cystic Fibrosis Links - http://www.goodgulf.com/cystic.html
Cystic Fibrosis Links and Information |
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CF Prescriber - http://www.cfprescriber.com/
Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease. |
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Clayton Bates Cystic Fibrosis Support Site - http://www.claytonbates.org
For family, friends, and other supporters to find out about the disease and offer support for Clayton. |
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Jewish Genetic Diseases - Cystic Fibrosis - http://www.mazornet.com/genetics/cystic_fibrosis.asp
Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening. |